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Complications with Peripheral Neuropathy
I was diagnosed with PN in 2018 with symptoms of tingling and pain in my feet. First Medication was gabapentin, (caused dizziness and falling) along with baclofen. Now on Lyrica, Baclofen (3X's day) ,
Cymbalta at night for cramps, Lidocaine/Prilocaine cream on both feet, especially top and bottom of toes. The neuropathy is now in both feet, in calf muscles in both legs, Additional symptoms are pain, stabbing, shock like pain, balance issues (using cane) severe burning in both feet, both legs have redness where nerves are irreparably damaged. Pain is so bad at times I cannot walk without pain and it prevents me from walking and participating in many areas I loved to do in the past. Many alternative treatments, hard to know if any really work. thank you.
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Do you have a diagnosis? PN is a symptom not a disease. Your symptoms sound a lot like my husbands He had sub acute degeneration of the spine and transverse myelitis.
@blowerk1216 One poster I believe is an actual spine surgeon has recommended Alpha Lipoic Acid, or ALA, for neuropathy. I'm trying it. and will be glad to post here if it works. My. neuropathy causes Ringling rather than pain.
What’s there to Like about my comment?
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2 ReactionsWell, for one thing, you are not the only one dealing with this kind of chronic pain and at least you can vent about it while looking for answers to get some relief. You might find it helpful to check out this related discussion:
-- Central sensitization syndrome and treatment?
https://connect.mayoclinic.org/discussion/central-sensitization-syndrome-and-treatment/
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8 Reactions@yaaqovk ALA is considered a valid supplement to address neuropathy but please make sure that you get the R form.
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1 Reaction@blowerk1216 What is the R form, what other forms are there, and how do I identify which form I have, or want?
The frustration you feel is palatable. Frustration with the unmitigated pain and not feeling heard or seen by medical professionals and no answers in sight, Heck, your username even says it all.
You ask another fellow member, @johnbishop, who has offered a virtual ear and understanding, why they "liked" your post. You're right. There is nothing to "like" about your situation. Maybe nothing to like about the comment and your misery. But I do like that you have found a place to vent and let your frustrations out. That can help - at least for a moment.
My hope is that you have also found a place in this online community to connect with others, to learn, to share successes, and maybe feel less alone in your pursuit for relief.
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11 Reactions@yaaqovk the unusual OTC product is the inactive S form. The R form will say it on the package label.
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1 Reaction@dlydailyhope has anyone considered a spinal cord stimulation system?
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1 Reaction@yaaqovk Hello, I just did a quick search, here is what comes up for ALA:
"You can purchase R-Alpha Lipoic Acid (R-ALA) supplements online through major retailers like Amazon or Walmart. It is also sold directly by supplement specialists like Nootropics Depot and BulkSupplements."
"Alpha Lipoic Acid (ALA) is an antioxidant. An antioxidant is a natural substance that helps shield your body's cells from damage. In nature, ALA comes in two forms: S-ALA and R-ALA."
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