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BIRAD 5 Surgical oncology consult, even with normal biopsy result?

Posted by leen83 @leen83, Jul 29, 2024

Had MRI and they found an area that they classified as BIRAD 5. Turns out I’m also severely allergic to contrast so they could only do the MRI guided biopsy on me without contrast, only using marker from prior biopsy.

Pathology report came back normal but radiologist wrote an addendum that my imaging does not match biopsy result and strongly recommends surgical consult/removal, especially since I can’t have an MRI to follow up.

To be safe, I made an appointment with surgical oncology to figure out next steps… Is there a chance that the pathology report be a false negative like radiologist was suggesting ( 3 radiologists have been working on my case) and it is in fact cancer since biopsy was not as accurate because they couldn’t use contrast plus it’s a non-mass finding?

Also what should I expect at the surgical oncology consult?

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myoga | @myoga | Mar 26 9:02pm
In reply to @cbajana8000 "Hey, I just got back my ultrasound and Mammogram and was labeled as BIRAD-5 for lump..." + (show)
Profile picture for cbajana8000 @cbajana8000

Hey, I just got back my ultrasound and Mammogram and was labeled as BIRAD-5 for lump that I noticed popping out but her concern was inflamed lymph nodes by it, I am having a biopsy on tuesday, and I wish I could get the diagnosis that’s benign but all I am reading pointing to it won’t. I just turned 40 and just praying for guidance here and trying not to
spiral.

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@cbajana8000
For me walking is the best way to calm down. Take a long walk and listen to your favorite music or audiobooks.
Keep in mind that even if the results are not what you hope for, breast cancer is treatable. We just have to go through the treatments and keep enjoying life after that. Hugs.

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Chris, Volunteer Mentor | @auntieoakley | Apr 6 9:23pm
In reply to @cbajana8000 "Hey, I just got back my ultrasound and Mammogram and was labeled as BIRAD-5 for lump..." + (show)
Profile picture for cbajana8000 @cbajana8000

Hey, I just got back my ultrasound and Mammogram and was labeled as BIRAD-5 for lump that I noticed popping out but her concern was inflamed lymph nodes by it, I am having a biopsy on tuesday, and I wish I could get the diagnosis that’s benign but all I am reading pointing to it won’t. I just turned 40 and just praying for guidance here and trying not to
spiral.

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@cbajana8000 someone reacted to this post and it reminded me that you were waaaaaiting. Did you get your biopsy results yet? 🤞

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leannestork | @leannestork | Jul 4 9:55pm
In reply to @seathink "@leen83 unfun about your birthday, sorry to hear. Probably it's going to come back as something,..." + (show)
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@leen83 unfun about your birthday, sorry to hear.

Probably it's going to come back as something, given the distortions and the other factors you mentioned. If they are giving it a BIRAD 5 they have signed off on the fact that they see it as having a 95% change of malignancy, so they are preparing for that.

Once they can get it out they will want to get the findings ASAP to your Primary Care Doc so they can get in touch with whomever you may need for oncology.

Treatment-wise it'll depend on what's best to get it all gone the easiest -- if you can use hormone blockers or is surgery is enough or do you have to go old school with chemo and radiation and things. Luckily there are great folks here who have been through it.

Let us know how it goes.

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@seathink Hi there... I am in Australia and i assume that your BIRAD 5 is the same thing as our Category 5.... I came here because within 2 hours they had me scanned, biopsied and wanting me within the next few days to have it removed. It is 7cm , i have no idea if it is at a Stage Level but not looking good at that size i think.. it is the same side i used to bleed out of a number of years ago... I have dense lumpy breast that always seem sore anyway but this was different.. didn't have to even push down on the skin to feel it... for anyone reading this it is easier to feel if you lay back in a recliner (hahaha) and put your arm up over your head. Don't let people tell you that a lump is not painful because mine is when it is pushed on. They couldn't beleive the size of it in such a short period of time as well. So fingers crossed i can beat this if it what it probably is, because i have little grandies i want to see grown up. I always said the people i understand the most with depression would be a mum that has to say goodbye to their kids..... I also have Lupus and Fibromyalgia, God i don't want to have Immune Supressants again... the suck the bloody life out of you....... Give me strength for them and thankyou for writing your experience above... cheers Leanne from Australia

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leannestork | @leannestork | Jul 4 10:01pm

Hi there... I am in Australia and Iassume that your BIRAD 5 is the same thing as our Category 5 here in Australia.... within 2 hours they had me scanned, biopsied and wanting me within the next few days to have it removed.It is 7cm , I have no idea if it is at a Stage Level..... but not looking good at that size I think. It is the same side I used to bleed out of a number of years ago. I have always had dense lumpy breast that always seem sore anyway but this was different, I didn't have to even push down on the skin to feel it.For anyone reading this it is easier to feel if you lay back in a recliner (hahaha) and put your arm up over your head. Don't let people tell you that a lump is not painful because mine is when it is pushed on. They couldn't believe the size of it in such a short period of time as well. So fingers crossed I can beat this if it what it probably is, because I have little grandies I want to see grown up.I always said the people I understand the most with depression would be a mum that has to say goodbye to their kids.....I also have Lupus and Fibromyalgia, geez I don't want to have Immune Supressants again... the suck the bloody life out of you....... Give me strength for them ... cheers Leanne from Australia

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Moderator
Colleen Young, Connect Director | @colleenyoung | 4 days ago
In reply to @leannestork "Hi there... I am in Australia and Iassume that your BIRAD 5 is the same thing..." + (show)
Profile picture for leannestork @leannestork

Hi there... I am in Australia and Iassume that your BIRAD 5 is the same thing as our Category 5 here in Australia.... within 2 hours they had me scanned, biopsied and wanting me within the next few days to have it removed.It is 7cm , I have no idea if it is at a Stage Level..... but not looking good at that size I think. It is the same side I used to bleed out of a number of years ago. I have always had dense lumpy breast that always seem sore anyway but this was different, I didn't have to even push down on the skin to feel it.For anyone reading this it is easier to feel if you lay back in a recliner (hahaha) and put your arm up over your head. Don't let people tell you that a lump is not painful because mine is when it is pushed on. They couldn't believe the size of it in such a short period of time as well. So fingers crossed I can beat this if it what it probably is, because I have little grandies I want to see grown up.I always said the people I understand the most with depression would be a mum that has to say goodbye to their kids.....I also have Lupus and Fibromyalgia, geez I don't want to have Immune Supressants again... the suck the bloody life out of you....... Give me strength for them ... cheers Leanne from Australia

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@leannestork, that sounds like diagnosis and surgery all happened very quickly. How are you doing?

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leannestork | @leannestork | 3 days ago
In reply to @colleenyoung "@leannestork, that sounds like diagnosis and surgery all happened very quickly. How are you doing?" + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@leannestork, that sounds like diagnosis and surgery all happened very quickly. How are you doing?

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@colleenyoung Thankyou so much for reaching out ... Had surgeon apt. ,
This week is oncologist...(this text message seem to tip me over the emotional edge) also my grandies on video chat .... gosh so bloody hard.
surgeon and oncologist both want me to have chemo straight upinstead......
Last week was MRI with contrast, PET scan and CAT Scan with contrast... all in two days....... I wonder if they will bring out a Dog Scan hahahahaha.....
Next month is surgery apt...
It has been a a rollercoaster that is for sure but i have found the people i have had to share due to apt's. beautician, Supplier's Rep's....you realise how many families are touched by the C word.....
I hope everyone has a little sunshine in their day that is reading this xo

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