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Skin squamous cell carcinoma (recurring)

Posted by annabach @annabach, Jul 2, 2023

Anyone else battled on-going outbreaks of squamous cell cancers? I have had dozens on my legs in the last two years. One required a swim graft. Three were MOHS procedures. A dozen were excisions with sutures. The rest were small and frozen. I just had an aggressive one removed the had quickly extended all the way to muscle. Who did you see? Are there other treatment options besides continued surgeries? I have at least six more that have popped up in the last week. It feels as though this will never end!

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jmglkn | @jmglkn | Jun 30 10:08am
In reply to @jodes1984 "@grammato3 Thank you so much for your kind words. I haven't had a biopsy yet, however..." + (show)
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@grammato3 Thank you so much for your kind words. I haven't had a biopsy yet, however the GP was pretty certain. I am so so scared, can't eat, sleep, getting moody with my kids. I feel like I'm going to die as I feel it's spreading rapidly. Still waiting for the 2 week wait via our UK NHS.

Do you mind me asking, how did your SCC look? Mine is huge, ulcerated etc.

The waiting is awful, and it feels so lonely x

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@jodes1984

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Mentor
Ginger, Volunteer Mentor | @gingerw | Jun 30 11:19am
In reply to @jodes1984 "@gingerw Thank you so much for your reply, how are you feeling now? I'm so pleased..." + (show)
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@gingerw Thank you so much for your reply, how are you feeling now? I'm so pleased you have a Dr that listens and takes you seriously.

If you don't mind me asking, how did they treat your aggressive SCC? X

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@jodes1984 My doctor knows I am not one to "cry wolf". All my specialists understand that there is research done on my part, and making sure things get addressed. This is where being your own best advocate is so helpful.

The one spot I am thinking about, had suddenly appeared on the back of my arm. Because of the history of melanoma and other skin cancers, I figured after a week or two, a call was in order. They got me in right away, took a closer look, and biopsied that spot. We set the MOHS procedures shortly thereafter, it was 6 stitches long for the incision. There are many scars on my face, neck, hands, arms, and upper torso, for both basal cell and squamous cell cancers. As @grammato3 has mentioned, there are several types of those cancers, and I have experienced them! Some were addressed with liquid nitrogen, many were MOHS.
Ginger

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Moderator
Colleen Young, Connect Director | @colleenyoung | 5 days ago
In reply to @jodes1984 "@lips702 Thank you, I've had it for 2 months, back and forth to the GP, I'm..." + (show)
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@lips702 Thank you, I've had it for 2 months, back and forth to the GP, I'm worried it's spread as no treatment just yet, still waiting the 2 week wait.

It looks really nasty, swollen, risen, black centre, ulcerated, I'm so conscious.

How do you feel day to day? I feel like I'm going to die, I'm so scared.

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@jodes1984, 2 weeks have passed now. Have you had your follow-up appointment? What did you find out? How are you doing?

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jodes1984 | @jodes1984 | 5 days ago
In reply to @colleenyoung "@jodes1984, 2 weeks have passed now. Have you had your follow-up appointment? What did you find..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@jodes1984, 2 weeks have passed now. Have you had your follow-up appointment? What did you find out? How are you doing?

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@colleenyoung Hi, I had to pay privately as I have only got an appointment letter through for the end of this month, so was getting worried xx Waiting another couple of weeks now for biopsy. X

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jodes1984 | @jodes1984 | 23 hours ago
In reply to @gingerw "@jodes1984 My doctor knows I am not one to "cry wolf". All my specialists understand that..." + (show)
Profile picture for Ginger, Volunteer Mentor @gingerw

@jodes1984 My doctor knows I am not one to "cry wolf". All my specialists understand that there is research done on my part, and making sure things get addressed. This is where being your own best advocate is so helpful.

The one spot I am thinking about, had suddenly appeared on the back of my arm. Because of the history of melanoma and other skin cancers, I figured after a week or two, a call was in order. They got me in right away, took a closer look, and biopsied that spot. We set the MOHS procedures shortly thereafter, it was 6 stitches long for the incision. There are many scars on my face, neck, hands, arms, and upper torso, for both basal cell and squamous cell cancers. As @grammato3 has mentioned, there are several types of those cancers, and I have experienced them! Some were addressed with liquid nitrogen, many were MOHS.
Ginger

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@gingerw I'm so sorry to hear that you have experienced them all, how did you cope mentally? I hope you're in the mend from them all?

I had my results today, it was a high risk SCC, so am having a scan tomorrow as my lymph nodes are up, so they want to see if it has spread to near y lymph nodes or organs. I'm so scared.

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