Total spine reconstruct surgery

Posted by ljhumphries72 @ljhumphries72, 4 days ago

Hey yall , my name is Lore, and im 54, and I have neuro surgeons and orthos at Emory in Atl. The neuro surgeon wants to do a very complex total spinal reconstruct on all 3 levels. These are the biggest of my diagnosis... Degenerative Scolosis, Levoscolosis, Dextro scolosis, Rotary Kyphosis, Ankyling Spondylitis, Spinal Stenosis, Facet disease, numerous broad herniated disc's i.pendong spinal cord and or thecal sac, bulging disc's bone spurs all along spine and most if these are bilateral. Listhesis and I could go on and on. The degree of my curve is 33 to 36 degrees. I've lost 5 inches in height through the years one inch in the last year alone. Are they anything out there for me other tgan that major surgery that is available

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Profile picture for tillymack @tillymack

@ljhumphries72 I've been going to a Schroth practitioner which is nothing like traditional PT. Schroth is recommended for scoliosis but not sure about the other spine issues you mention.
https://www.hopkinsmedicine.org/health/conditions-and-diseases/scoliosis/schroth-method-for-scoliosis
AI overview: The Johns Hopkins Medicine Schroth Method is a specialized, 3-D physical therapy program for scoliosis and kyphosis. It uses customized exercises and angular breathing to de-rotate, elongate, and stabilize the spine, aiming to halt curve progression, reduce pain, and restore posture without surgery.

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tillymack, Shroth is probably a slow process. Can you tell if it is helping. How long have you been having treatment. Thanks

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Profile picture for mawmaws @mawmaws

@gently I just had spine surgery in St. Louis, Missouri. But Mayo Clinic isn’t the greatest like it used to be. I’ve heard a lot of things that were not good reviews. I went there years ago for a different issue drove all the way there spent four days and really didn’t get any answers. Just a big bill.

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@mawmaws Did you go to BJC in St. Louis for your surgery? I live near there.

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Profile picture for mawmaws @mawmaws

@gently I just had spine surgery in St. Louis, Missouri. But Mayo Clinic isn’t the greatest like it used to be. I’ve heard a lot of things that were not good reviews. I went there years ago for a different issue drove all the way there spent four days and really didn’t get any answers. Just a big bill.

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@mawmaws I also found that Mayo is not as good as it used to be.

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Profile picture for Mariette R. @marietter

@mawmaws Did you go to BJC in St. Louis for your surgery? I live near there.

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@marietter yes, I did go to BJC. I do not like that hospital. If it weren’t for the surgeon, I would’ve never been there, but my surgeon is well-known for doing spinal surgeries with cancer metastasized to the spine.

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Profile picture for gently @gently

tillymack, Shroth is probably a slow process. Can you tell if it is helping. How long have you been having treatment. Thanks

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@gently More benefits can be expected for children and teens. As an older person, my best hope to to stop the progression which would be wonderful because without treatment, my curve was expected to progress by 3% per year. I will have a follow up appt soon to measure my curve for the first time since starting Schroth. In any case, my plan is to continue with the exercises indefinitely.

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