Anyone diagnosed with PV AFib but actually had vagal ?

Hi everyone, I’m sharing my story to help others who may be misdiagnosed.

I was originally told I had paroxysmal AFib likely caused by pulmonary vein triggers. But during my ablation, no electrical activity was found in the pulmonary veins. Instead, activity was found in the right superior ganglionated plexus, nerve cluster confirming that my AFib was vagally mediated.

Looking back, the signs were there all along—but they were easy to miss:

I had no underlying heart disease and a structurally healthy heart.

I’m under age 55 and had episodes mostly at rest, especially after meals or lying down.

My heart rate was calm before going into AFib, unlike the stress- or exercise-triggered episodes more typical with PV-AFib.

Beta blockers made my symptoms worse, increasing fatigue, gas, and vagal pressure.afib episodes

This type of AFib reacts very differently to standard treatments. I wasn’t told about vagal AFib before the ablation, and I wasn’t given the chance to explore more aligned approaches beforehand.

If you’re dealing with strange symptoms, if your episodes don’t fit the typical pattern, or if you’re getting worse on medications that are supposed to help, you might want to consider vagally mediated AFib.

I’d be happy to share more about what I’ve learned and what’s helped me recover. You’re not alone—and your AFib might not be what they first said it was. Vagal is not the same as pv afib.