Bone Marrow Transplant emotional support

Welcome to the forum. You will find many people here who have had similar experiences and who can not only listen but offer helpful advice. Please, ask you questions and voice your concerns.

Michele— I’m really sorry for what you and your husband are going through. Although I’m not familiar with bone marrow transplants, my hubby does have a terminal illness. I know the uncertainty is hard. I feel for you and hope you find connection and support for your particular situation.
Take care.

@rsp21224 Michelle, I think the best person to help you and answer your questions @loribmt . She had a bone marrow transplant several years ago and is back to being quite the energetic sprite. @becsbuddy

@rsp21224. Hi Michelle! Having a BMT is quite a roller coaster ride of emotions, for both the patient AND the caregiver. As @becsbuddy mentioned in her reply, I had a BMT for acute myeloid leukemia 7 years ago at Mayo Rochester. I just “cell”ebrated last week that anniversary last week.

My husband was my caregiver and wow, he was an absolute pillar of support for me. But I watched him age before my eyes with what he saw me going through and then all the responsibility levied on him for all those months. Having been married 45 years at the time, you can imagine there was a division of labor between the two of us. So the burden of my forced abandonment of my duties fell on his shoulders. Believe me, all of us here in Connect who have gone through this amazing medical miracle of gaining a 2nd chance at life know that it did not come without a steep mental toll for us and for our families. So you’ve come to the right place for support! We’ll do our best to help you and your husband weather the challenges! Don’t hesitate to ask us anything!

I’d like to introduce you to just a few of what I like to call my BMT Posse! When I became the mentor in this group, there were just a few of us but we’ve grown in numbers so I’d like you to meet @dwolden, @mary612 @g4c @alive @anitasharma…Each of us have a different story and perspective.

I’d also like you to join us over here: My Bone marrow Transplant story. Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
And here: Snapshots of hope: Life on the other side of transplant! Photos https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/

What underlying disease had your husband requiring a BMT?

Hi Michele. My husband had an allogenic stem cell transplant in August of 2024. He’s doing well now but we did go through a lot.
I’d be glad to talk to you or message.
Lori has been a great mentor to me.