← Return to Bone Marrow Transplant Caregiver: Looking for emotional support

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Profile picture for Lori, Volunteer Mentor @loribmt

@rsp21224 Hi Michelle, there can also be some advantages to tunnel vision and not having to ‘take in the entire picture’ at one time. It can be overwhelming to try and cope with the broad scope of things.
I’m a notorious for compartmentalizing. That is my coping mechanism. I only allow a little bit to come out at a time when I’m ready for it. If that makes sense. But certainly there needs to be brief glimpses of the big picture and a positive projection for the future.

I hope you’ll find you don’t have to feel isolated. Like I mentioned earlier, you are not in this journey alone as a caregiver. And we’re also here for your husband! Though I know from my own experience, as a patient I was pretty much just along for the ride. I trusted my team and complied with all their wishes. That kept me grounded. However, as caregiver, you are carrying the full load. If I may, one piece of advice my transplant doctor said to me, and my husband, “Please, leave any worries up to me. That’s why I am here so that you can focus on rest and recovery.” That’s all I needed to know. It gave my husband peace of mind as well.
Don’t hesitate to talk to the team members. That’s what they are there for. They want your husband and you to be as comfortable as possible throughout the entire mission. I’m 7 years post transplant and I can still contact my team for support and have annual personal followups at Mayo. They want a successful outcome and happy healthy life ahead for your husband as much as you do! ☺️

So, again, please know you’re not alone. Let me know if I can help you with anything, ok?

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Replies to "@rsp21224 Hi Michelle, there can also be some advantages to tunnel vision and not having to..."

@loribmt my husband is +4 and just starting to feel the side effects of the chemo just really hard to watch He has always been the strong one. I suffer from anxiety and so this is just very challenging for me.