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Tymlos and severe spine pain
Has anyone else had severe spine pain with a pressure radiating all the way up to head, the pain is a throbbing like heart beat for about 30 minutes after I try to lay flat after my injection. I’ve been on Tymlos 1.5 months and started after a motorcycle trike ride. We did hit several bumps. The pain is almost unbearable and subsides about after 30 minutes. I have a call into my doctor. Am wondering if a vertebral fracture could bring on these sudden side effects?
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I don't think that's Tymlos. I think it's more likely that your motorcycle ride has caused a problem. You definitely need an X-ray ASAP.
I have read where Tymlos can cause these side effects, I agree with the need for xray. Working on that today
@lmpa65 Please keep us up to date!
Had lumbar and thoracic X-rays no new fractures or other changes. Glad of that. Still perplexed about the symptoms.
@njx58 had labs today also. Everything is my normal except for a very elevated alk phos. Still waiting to hear from doctor about that. So far stopping Tymlos.
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1 Reaction@lmpa65
The first time I had a Tymlos injection, I did the full 80 mcg. After about 15 minutes, I had an intense back spasm, which worked its way up from the bottom of my spine, all the way up my back. It was the most intense pain I had ever felt. It lasted about 30 minutes, then it subsided. I lay on my heating pad and called my endocrinologist. My doctor told me to stay hydrated, take calcium supplements for a few days- about 500-600 mg of Citracal or equivalent meds, double up on Vitamin D. She said if this happened after second shot also and does not seem to be improving with these measures, to stop the med and we would try to get Forteo approved. I asked her if I could instead titrate up. I had read about that approach in this forum. She agreed. I spent about a week on 20 mcg, then moved up to 40, 60 and then 80. It took me about a month. The second night, the pain was much less. If pain the first night was a 9 (30 min), the second night it was about a 5 (15 min), and after that was 2 (1 min). At each new level, the pain started out about 3 and dropped to negligible after a few days. After about a month, the discomfort was minimal, and always passed quickly.
Yes it has happened to me too. Not at first but after the first 2 months of injections. The back pain would start about 10 minutes after the injection and last 30 minutes so I'd just plan to lie down for half an hour afterwards. I think I read somewhere that the spasms had to do with an influx of calcium into the bloodstream post injection or something to that effect. Moving back to Evenity next week as my Part D doesn't cover Tymlos. Had allergic site reactions to Evenity in the past but we'll see how it goes. My doctor told me to take Benedryl this time around rather than Zyrtec.
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1 Reaction@miya19 those are the exact same symptoms I had plus it was a throbbing pain like my heart beat all the way to my head. This was a random shot in my second month of taking it. My providers want me to stop and they are switching to Prolia if it will be approved. I used a similar medication 20 years ago and it says you are not supposed to take it past two years. I completed the two years. Since this medication was different and it had been twenty years they decided to go a head with the Tymlos. Thank you for sharing at least I know now I’m not totally nuts.