Connect
Tymlos and severe spine pain
Has anyone else had severe spine pain with a pressure radiating all the way up to head, the pain is a throbbing like heart beat for about 30 minutes after I try to lay flat after my injection. I’ve been on Tymlos 1.5 months and started after a motorcycle trike ride. We did hit several bumps. The pain is almost unbearable and subsides about after 30 minutes. I have a call into my doctor. Am wondering if a vertebral fracture could bring on these sudden side effects?
Like
Helpful
HugInterested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Connect
I don't think that's Tymlos. I think it's more likely that your motorcycle ride has caused a problem. You definitely need an X-ray ASAP.
I have read where Tymlos can cause these side effects, I agree with the need for xray. Working on that today
@lmpa65 Please keep us up to date!
Had lumbar and thoracic X-rays no new fractures or other changes. Glad of that. Still perplexed about the symptoms.
@njx58 had labs today also. Everything is my normal except for a very elevated alk phos. Still waiting to hear from doctor about that. So far stopping Tymlos.
-
Like -
Helpful -
Hug
1 Reaction@lmpa65
The first time I had a Tymlos injection, I did the full 80 mcg. After about 15 minutes, I had an intense back spasm, which worked its way up from the bottom of my spine, all the way up my back. It was the most intense pain I had ever felt. It lasted about 30 minutes, then it subsided. I lay on my heating pad and called my endocrinologist. My doctor told me to stay hydrated, take calcium supplements for a few days- about 500-600 mg of Citracal or equivalent meds, double up on Vitamin D. She said if this happened after second shot also and does not seem to be improving with these measures, to stop the med and we would try to get Forteo approved. I asked her if I could instead titrate up. I had read about that approach in this forum. She agreed. I spent about a week on 20 mcg, then moved up to 40, 60 and then 80. It took me about a month. The second night, the pain was much less. If pain the first night was a 9 (30 min), the second night it was about a 5 (15 min), and after that was 2 (1 min). At each new level, the pain started out about 3 and dropped to negligible after a few days. After about a month, the discomfort was minimal, and always passed quickly.