1. < Stroke & Cerebrovascular Diseases
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Arteriovenous Malformation (AVM) survival and side effects

Posted by auldcelt @auldcelt, Dec 16, 2016

I'm a survivor of an AVM in my right hemisphere. Since the surgery I am dealing wth migraines and wondered if anyone else has experienced this. If you have what have you tried to get back to normal living. I'm also interested in reading about studies and research on AVMs

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Profile picture for Lisa Lucier, Moderator
Moderator
Lisa Lucier, Moderator | @lisalucier | Sep 30, 2025

Hi, @auldcelt - wondering how you are doing lately?

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lynf | @lynf | Jan 14 5:27am
In reply to @stellgma "Hello, does anyone else have a dura brain fistula? I was diagnosed with 2 of them..." + (show)
Profile picture for stellgma @stellgma

Hello, does anyone else have a dura brain fistula? I was diagnosed with 2 of them and haven’t heard of anybody else having brain fistulas. I’ve read a lot online about them, but would like to talk to someone who has one.

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@stellgma
Hello, I had a Dural artiovenous fistula DAVF. I’d be happy to chat if it would be helpful to you.

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Moderator
Lisa Lucier, Moderator | @lisalucier | Feb 10 11:08am
In reply to @mockinbrd "I'm so pleased you were able to stumble across this forum. I think you will find..." + (show)
Profile picture for mockinbrd @mockinbrd

I'm so pleased you were able to stumble across this forum. I think you will find genuine support here. I’m sure you will experience sincere hope for your daughters full recovery. I went to Mayo's in January 2019. Had a craniotomy and lengthy surgery after couple of angiograms and coils for stabilization. No one is promised 100% in life. But I think you can expect your health professionals to give you their best medical treatment they can give. You will find sincere efforts on your daughters behalf. Best of luck. Let me know if I can help.

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@mockinbrd - I see that you had a craniotomy a few years back, and I'm wondering how you are doing now?

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mockinbrd | @mockinbrd | Feb 10 4:18pm
In reply to @lisalucier "@mockinbrd - I see that you had a craniotomy a few years back, and I'm wondering..." + (show)
Profile picture for Lisa Lucier, Moderator @lisalucier

@mockinbrd - I see that you had a craniotomy a few years back, and I'm wondering how you are doing now?

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@lisalucier
Hello Lisa,
Thanks for thinking of me. I’m doing pretty darn good. Still have some diminished abilities. But I think Mayo is such an incredible place. I would recommend it to everyone. My doctor, Giuseppe Lanzino, is the best. And I have the privilege to send him and nurse Reps a valentine’s flower on each the anniversary of my surgery, February 14th.

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davfr | @davfr | 1 day ago

Hii ...I am new to this group..my husband is suffering from Right Tentorial Davf, with symptoms of tingling and numbness in the limbs, unable to walk without support, bladder and bowel are affected because of spinal cord edema and our doctor has suggested for surgery to clip the main feeder vein .Has anyone undergone for the same surgery? I would like to understand the risks and success of it and wether full recovery is possible after surgery.

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