Prolia and its side effects.

I have been taking Prolia for a few years now and I have never suffered any side effects. Like all medicines there is a list of side effects but that doesnt mean you will get them. I get my shot twice a year and never feel any different after shot than before I am 87 years old and have lots of aches and pains from aging alone. Please dont be afraid to try this mediicine and judge it for yourself

I had my first dose on Feb 16th this year. I am just starting to feel a bit better (three months later) but still experiencing symptoms of pain in my feet, knees, wrists, and lower back. I also have sinus problems like you. It is a very slow recovery. The half life of this drug is 25 to 32 days (so I thought I would feel better in a month) but this drug continues to work on your bones for up to 4 months. I have only started to feel "marginally" better in the past two weeks. I would have one reasonably good day followed by the return of full symptoms. So far this week, I am "marginally" better but not close to being normal yet. I also, like you, am very sensitive to drugs. I also take the smallest dose possible to drugs like allergy medication. I have also had serious reactions to the smallpox vaccine and penicillin. My daughter is allergic to the tetanus vaccine. To be honest, this drug has caused me to be housebound and I have been unable to do even the basic routines of normal life. I will never take it again. Thank you so much for replying. I so appreciate that. I am not the only one. Thank You.

Hello. I just joined this group today. I hope you are have a happy and safe 4th of July! JZ

@pattyannblack
I think it takes longer than they say to get out of system, especially when sensitive to med. I had mine 3/27
and I am not "me" yet but slowly getting there. I wonder how many out there have side effects we do not know about. The fatigue and sinus were really bad, I have allergies and nothing helped, now more back to my normal seasonal allergies. With the fatigue I had to plan on how to get up to do a few little things, now it is different, am able to get up and go but not quite there yet. Not everyone is the same and we all can react differently to drugs but is seems that cannot be figured out.

Sorry , wrong date when I took mine it was last year, when I went back in April had all the bad side effects for 5 months, and felt all side effects and was told not to take another shot and do not think it is out of my system yet but slowly slowly getting better. The rest of the reply the same, just had time frame wrong . Sorry

@jdh5 I agree fully. I am at 4 1/2 months since getting the shot. I am so done with this. I get 2 good days and get excited and then wake up to fatigue and pain. It's up and down for me. I am better but just a little better and for short periods of time. I take pain killers (tylenol, ibuprofen, aspirin) 3 - 4 times a day.....every day. The recovery for me is the same....very slow. So frustrating. There is NO WAY I am taking this drug again. That would qualify as torture. Please keep in touch jdh. I am curious to see how long it takes us to get back to normal.

Will gladly keep in touch, sounds like we are having the same problems , I have some anxiety and that also got worse as I was so frustrated from the way I felt.

I found info on reliable websites. Has awful side effects, sever fatigue, nasal congestion, water eyes where no meds helped, much much worse than my seasonal allergies, dry skin,throat and lips,some itching, dry eyes, light headed at times and anxiety worse.
When I went back to my dr she said not to take the next shot and increase Vit D and calcium. I am very sensitive to meds and usually take a smaller or half dose which works which is fine with my Dr., you cannot do this with Prolia. Did not take next shot very slowly side effects going away but not quite where I want to be yet. I think it stays in system longer than they say as everyone reacts differently.

I had the shot and with a couple days my whole body hurt and continued to hurt for a couple months. I now take Fosamax. I have arthritis in my knees and hips and shins/calves. My knees do not hurt, I use the exercise bicycle 30 minutes a day. My right glut huts for seven years after Prolia. Not too much change in my bone scan after four years on Fosamax. After reading on the internet, I am not sure how much longer I can continue taking Fosamax. I have another appointment with a pain doctor in a couple weeks about just what where the pain in my legs is coming from.

@me75
Well, that cinches it for me! I had decided against Prolia because I had learned that if you stop taking it, you lose all progress you have made. I'm not going to take a drug like this that I would have to stay on forever. No bisphosphonates for me after seeing a friend of my Mom's go through the jaw necrosis. Took Tymlos, but got a big kidney stone from that (no thanks!!). Not many options left, I guess. I'm starting to feel like all of these meds are a bunch of BS - no offense intended to anyone. Thank you for sharing your experience!