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Glomerulonephritis
My oldest brother who is in his mid 70’s was just Dx with glomerulonephritis and the doctor is planning to give him infusions to suppress his immune system and start him on Farxia( not sure of spelling) can anyone tell me anything about this and what if any issues they had?? Thank you in advance
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@dragonflylady Glomerulonephritis is kinda an umbrella statement. First is figuring out the underlying cause before treatment starts. Here are some good links to read through. Sometimes the information is a repeat, but might be said in a different format. Has your brother been told the underlying cause? Why is his eGFR if he knows that?
From Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/glomerulonephritis/symptoms-causes/syc-20355705
From the National Kidney Foundation: https://www.kidney.org/kidney-topics/glomerulonephritis
From the Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/16167-glomerulonephritis-gn
My kidney disease falls into the glomerulonephritis category, as an autoimmune cased situation.
Ginger
@gingerw
It started off with extremely high protein levels in his urine and no other symptoms. Then they finally did a kidney biopsy and through that he was diagnosed with glomerulonephritis as an autoimmune disorder same as yours. That’s about as much as I know except for the infusions (x2) he’ll receive so many weeks apart then given the medication to protect his kidneys etc. I am the baby of the family and he is the oldest and we are very close. We have a brother (74) sister(72) between us. They are healthy. I have 3 autoimmune diseases and as I’ve talked about my brother now has the one. We lost our dad in 2022 he was 92. I was extremely close to him. Our mother is living she is 94 and in surprisingly good health and very sharp mentally. I worry if something were to happen to my brother him being her oldest born what it would do to her. She depends on him more than us other 3.
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1 Reaction@dragonflylady It would be great if your brother can get in to see a renal dietician, who can help him set up a sound diet plan. Keeping close track of his kidney function is critical, and coordination/communication between everyone on his medical team is important. And your brother is part of that team, don't forget!
If his doctor can tell him what autoimmune condition he feels is the cause, that should be noted, also. Has he found out what that might be? There are several autoimmune conditions that can be behind the glomerulonephritis.
Ginger