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Possibly an intraductal papillary mucinous neoplasm (IPMN)

Posted by craigjulian @craigjulian, Jan 23, 2025

I have had nausea, indigestion, bloating, and feeling cruddy for 16 months. I had an abdominal CT scan done 16 months ago which didn't show much.
I had another abdominal CT scan a week ago that that showed: Incidentally noted subcentimeter cystic lesion in the pancreatic uncinate process, possibly an IPMN. 0.8 cm hypodensity in the pancreatic uncinate process. No
ductal dilatation or adjacent inflammatory changes.

I have not heard from my doctor yet. Does anyone know what this means?

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joeseah | @joeseah | 3 days ago
In reply to @poppett "I am a 74 year old woman who has a recent MCN/IPMN diagnosis with highly atypical..." + (show)
Profile picture for poppett @poppett

I am a 74 year old woman who has a recent MCN/IPMN diagnosis with highly atypical cells. Not cancer.
My oncological surgeon has advised Distal pancreatectomy with splenectomy. I have no gallbladder and have existing digestive issues.
I’d love to hear from anyone who has had this surgery and how your initial recovery went and any long term effects post-operatively of living with a partial pancreas and no spleen.

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@poppett
Hi Poppett
I am 68 years.old. I was diagnosed with IPMN last December 2025. The doctor said it was atypical but this then turn nasty very quickly. Before having IPMN I was fit and healthy not on any medication.
The jaundice set in and my bile duct was completely blocked. Had Total Pancreatectomy this April and recovered well. Thankfully the surgeon managed to preserve my spleen. Just had my 1st course of chemotherapy.

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poppett | @poppett | 2 days ago

Hi Joe,
So this went from atypical cells to cancer requiring total pancreatectomy?
I have so many questions!
How did they decide they could save the spleen?
How are you feeling now? You must be diabetic with no pancreas. Also are you on pancreatic enzymes?
How is your weight and digestion? Ate you on sny special diet?
Val

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1 reply
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joeseah | @joeseah | 2 days ago
In reply to @poppett "Hi Joe, So this went from atypical cells to cancer requiring total pancreatectomy? I have so..." + (show)
Profile picture for poppett @poppett

Hi Joe,
So this went from atypical cells to cancer requiring total pancreatectomy?
I have so many questions!
How did they decide they could save the spleen?
How are you feeling now? You must be diabetic with no pancreas. Also are you on pancreatic enzymes?
How is your weight and digestion? Ate you on sny special diet?
Val

Jump to this post

@poppett
Hi Poppett,
Yes I had a total Pancreatectomy
. We asked the surgeon if possible to save the spleen which was possible when he looked into it during surgery.
I recovered very well and started gaining about 2.2 pounds in a month after week 9 of the surgery in the last 2 months. I am on 4 Creon for meals and 2 for snacks.
Hope this helps.
Joe

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joeseah | @joeseah | 20 hours ago

Hi

I would get follow up asap and have an MRI.
Joe

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1 reply
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poppett | @poppett | 2 hours ago
In reply to @joeseah "Hi I would get follow up asap and have an MRI. Joe" + (show)
Profile picture for joeseah @joeseah

Hi

I would get follow up asap and have an MRI.
Joe

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@joeseah I had an MRI. It recommended follow up in 6 months. They are recommending pancreatectomy and splenectomy based in the results of a fine needle biopsy which showed highly atypical mucinous cells.
I have no symptoms.

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