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Nerve Pain from HELL
I have Neuralfibromatosis Type1. I had a L3/L4 fusion in 2020 at the apex of my Scoliosis to relieve back pain. That went fine. With my condition I have several internal fibromas inside my body. One of which was on my L5/S1 Vertebrae that was pinching a nerve sending pain down my left leg. It was inside a myelin sheath, and when the surgeon operated on me in August of 2025 he had to quote: 'Sacrifice a nerve' end quote. I woke up to my left leg numb, dead, lifeless.. I thought it was nerve block, but no. I was told it was permenate. I could move my leg and foot, just couldn't feel anything. Fast forward a few weeks after the surgery. From the knee to my ankle still feels numb, like Novocaine when you go to the dentist. When you get home and you're smacking your face in the mirror. Know what I mean? You feel your hand touching your face, but you don't really feel it. That's what my leg feels like. My foot however is hypersensitive and in constant pain. Just touching it is excruciatingly painfull. I cannot walk on it, or even touch it. Putting a sock on is beyond painfull. Plus I get these electric pulses that are rythmic, that intensify the pain and take it up a notch. It's now Insane Pain. They gave me muscle relaxers, pain pills, Pregabalin (it was Gabapentin), and nothing works. My foot is in CONSTANT 24/7 pain, and the jolts I get make the pain 10X worse. I can't sleep, I can't even walk on it. I hop around on one foot with my walker, and can't do anything. I can take pain, but this constant nerve pain is totally insane. I don't know what to do. Seeing 5 Dr's that don't know what to do either. All the mends they gave me for Neuropathy do NOTHING.
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@lisalucier Sure thing! It's basically a general search. I have lots of time on my hands to do research. lol https://www.bing.com/search
@insanepain I’m having spinel decompression L1-L-5 in 4 weeks. Pain is horrible in the lower back and front hips down. If you’ve had the surgery was ineffective? Anything you’re doing to help prevent incontinence? I’m going every 2 hours to help prevent it. Thanks. Jan D from Texas.
Hey, I had l5s1 full herniated disc and disectomy on 03/2017. The disc part of the surgery was successful, but the surgeon said there was a lot of scar tissue on the sciatic nerve and he scraped it off. I came out of surgery with the same burning excruciating pain in my leg and foot just like you described. A light breeze was severe pain. It got better over 3 weeks, but far from healed. I experience all the nerve symptoms every day and the numbness fat feeling is constant from mid thigh down to toes. The calf muscle is some of the worst with burning and cramping. I could go on and on describing it all . As for what helps, lidocaine cream, norco and gabapentin. Ice packs are great alternative to drugs, and focused breathing and meditation. About a year ago my PT got me strengthening and stretching. A lengthening exercise that targets the front of my hip by laying down and pressing through the heel into a small soft ball or anything, even a band or strap, opened up that area and I get a flush of blood flow and less nerve pain temporarily. Also standing hip hike strengthens the whole system. I stretch every way possible around my hips and do a lot of core exercises, with the bridge pose and front lunge for hip flexors, we are all built different with weakness and nerve or joint damage in places. But I am getting some minimal relief, and hopefully it leads to a better functioning environment for the nerves to heal more. Good luck.