Nerve Pain from HELL
I have Neuralfibromatosis Type1. I had a L3/L4 fusion in 2020 at the apex of my Scoliosis to relieve back pain. That went fine. With my condition I have several internal fibromas inside my body. One of which was on my L5/S1 Vertebrae that was pinching a nerve sending pain down my left leg. It was inside a myelin sheath, and when the surgeon operated on me in August of 2025 he had to quote: 'Sacrifice a nerve' end quote. I woke up to my left leg numb, dead, lifeless.. I thought it was nerve block, but no. I was told it was permenate. I could move my leg and foot, just couldn't feel anything. Fast forward a few weeks after the surgery. From the knee to my ankle still feels numb, like Novocaine when you go to the dentist. When you get home and you're smacking your face in the mirror. Know what I mean? You feel your hand touching your face, but you don't really feel it. That's what my leg feels like. My foot however is hypersensitive and in constant pain. Just touching it is excruciatingly painfull. I cannot walk on it, or even touch it. Putting a sock on is beyond painfull. Plus I get these electric pulses that are rythmic, that intensify the pain and take it up a notch. It's now Insane Pain. They gave me muscle relaxers, pain pills, Pregabalin (it was Gabapentin), and nothing works. My foot is in CONSTANT 24/7 pain, and the jolts I get make the pain 10X worse. I can't sleep, I can't even walk on it. I hop around on one foot with my walker, and can't do anything. I can take pain, but this constant nerve pain is totally insane. I don't know what to do. Seeing 5 Dr's that don't know what to do either. All the mends they gave me for Neuropathy do NOTHING.
Interested in more discussions like this? Go to the Spine Health Support Group.
Connect

@lisalucier Sure thing! It's basically a general search. I have lots of time on my hands to do research. lol https://www.bing.com/search