Weight loss with PMR

Posted by debdan8825 @debdan8825, 6 days ago

Since being dx with PMR 2 1/2 years ago I have lost weight, even on prednisone. I was on prednisone for 18 months, losing about a half pound a month. When I went off prednisone I have been losing one to two pounds a month. I'd this normal? I know most people gain while on prednisone but I was so fatigued and no appetite. Just wondered if anyone else has experienced the ongoing weight loss. I have been symptom free since last Aug but really never got my appetite back.

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Profile picture for elainepoc @elainepoc

I was diagnosed in April with pmr. I am on 15mg of prednisone daily. My appetite is way too good. I’ve decided to diet but need to determine how many oz of protein I need in a day.

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@elainepoc Same here... I need to cut calories I guess because I was way more active and went to Pilates and the gym before this started. Experts disagree on how much protein but I think about 1 gram per pound of body weight. So if you weigh 140 lbs, then 140 grams of protein. Thats on the high end and if you do resistance training....try 120 grams maybe

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Profile picture for debdan8825 @debdan8825

@kayept just thankful that others have also lost weight with pmr. My doctor scared me!

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@debdan8825

Has your doctor suggested that you may be experiencing adrenal insufficiency? Your heavy fatigue and weight loss seem to indicate that possibility. Might ask for a referral to an endocrinologist.

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I had my adrenaline functioning tested last Nov and all was good.

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