Predisone

Posted by ebjj4health @ebjj4health, Jun 23 8:26am

I started having back pain and night sweats after 3 weeks of predisone, the pain migrated from lower spine to thoracic, cervical, scapular and sternum. Stayed on prednisone for 3 months, now on Mycophenolate. Those symptoms continue and also have abdominal, pelvic, thigh and knee swelling. I have not been given a reason for these symptoms after seeing numerous doctors. Anyone experience anything similar?

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Profile picture for jcl75 @jcl75

@istraz34
No, I got to the actual site. It seems when you select a state, all states are not included in the options. I could get it at Amazon though I can't be sure of it's authenticity.

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@jcl75 You may need to call them at 1-435-429-0934 to verify if there are any current delivery restrictions or surcharges for your North Carolina area." I didn't know this could / would happen. So Sorry

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Profile picture for istraz34 @istraz34

@jcl75
Hi JC

The product is spelled NUTRANIZE , , maybe that is the problem, Don't know what the other is.

Dr. Megan's videos are very helpful as well.

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@istraz34
A few things worth knowing as you weigh Dr Megan's content:

1. "Dr." for a PharmD is accurate but easy to conflate with a physician. She's a pharmacist, not an MD — she has deep training in how drugs work and interact, but she doesn't diagnose conditions or manage your prednisone taper the way your prescribing doctor does.
2. She sells a supplement (Nutranize Zone). Her content is tied to a commercial product she created and profits from. That doesn't make her unqualified, but it does mean her advice has a business incentive behind it — worth factoring in like you would with any info from a company site.
3. Her nutrient-depletion framing (calcium, vitamin D, chromium, etc.) is grounded in real pharmacology — prednisone does affect calcium/bone metabolism and blood sugar — but specific supplement dosing claims from a product page are a different thing from peer-reviewed guidance, so it's worth cross-checking anything specific with your own doctor or pharmacist.

So: real credential, real license type, but a commercial content creator rather than a neutral clinical source — treat her general info as reasonably credible, and treat product-specific claims with normal marketing skepticism.

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Profile picture for jcl75 @jcl75

@istraz34
No, I got to the actual site. It seems when you select a state, all states are not included in the options. I could get it at Amazon though I can't be sure of it's authenticity.

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@jcl75
Managed to order Nutranize. Thanks fore your advice.

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Profile picture for kjoed53 @kjoed53

@istraz34
A few things worth knowing as you weigh Dr Megan's content:

1. "Dr." for a PharmD is accurate but easy to conflate with a physician. She's a pharmacist, not an MD — she has deep training in how drugs work and interact, but she doesn't diagnose conditions or manage your prednisone taper the way your prescribing doctor does.
2. She sells a supplement (Nutranize Zone). Her content is tied to a commercial product she created and profits from. That doesn't make her unqualified, but it does mean her advice has a business incentive behind it — worth factoring in like you would with any info from a company site.
3. Her nutrient-depletion framing (calcium, vitamin D, chromium, etc.) is grounded in real pharmacology — prednisone does affect calcium/bone metabolism and blood sugar — but specific supplement dosing claims from a product page are a different thing from peer-reviewed guidance, so it's worth cross-checking anything specific with your own doctor or pharmacist.

So: real credential, real license type, but a commercial content creator rather than a neutral clinical source — treat her general info as reasonably credible, and treat product-specific claims with normal marketing skepticism.

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@kjoed53
Never said she was a dr. A pharmacist yes. And yes, always check with your own dr.

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Profile picture for istraz34 @istraz34

@kjoed53
Never said she was a dr. A pharmacist yes. And yes, always check with your own dr.

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@istraz34
I was not implying that you did, but I didn't want someone else reaching out for information to take what she says in her videos as unadulterated fact without considering the source and the commercial aspect of selling her own product. Information is the power that drives our own advocacy.

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Profile picture for istraz34 @istraz34

@jcl75 Glad things are improving for you! I too have GCA/PMR and am taking vitamins to cover the damage Prednisone can do as it depletes many vitamins and may cause hair lose. I am trying Nutranize as this pharmacist has had complications and has made vitamins to combat it. She's a pharmacist. Look up Dr. Megan online- many videos. You can get a coupon or special deal on Amazon as these are expensive but worth it. Good luck !

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@istraz34 Make sure that your doctor is aware of ANY new medicines you are going to take! Vitamins are great when used properly but can cause real problems if they build up in the body.
If you are trying to restore what the body has lost, do so, but with care. This is a gentle reminder to all of us on Mayo Clinic Connect!

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@istraz34 Make sure that your doctor is aware of ANY new medicines you are going to take! Vitamins are great when used properly but can cause real problems if they build up in the body.
If you are trying to restore what the body has lost, do so, but with care. This is a gentle reminder to all of us on Mayo Clinic Connect!

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@becsbuddy I am adding my story to this thread.
I was diagnosed with PMR back in January, after requesting a referral to a rheumatologist for lingering pain in my hips and shoulders after multiple cervical fusion surgeries in July and then September.
I believe PMR is caused from stress, just my opinion.
Because I have osteopenia, I was only given 12 mg. Of methylprednisolone , then reduced to the current 8 mg.
I had a day away of driving a couple hours to watch our grandchildren play soccer, and started feeling bad. This gradually became worse, until I had unbearable pain that moved to a different place in my lower back, first the left side, then the right side, down the back of my thighs, with numbness and pain into my feet. I couldn’t walk, without my walker.
An MRI of lumbar spine showed nothing. I requested a ct scan of my sacrum because I asked AI for an opinion after putting in my symptoms, it showed I had a bilateral fracture of my sacrum, (also showed a previous fracture of my pelvis that had healed!).
There is little that can be done for this, only rest until it heals.
I am starting on a biologic med next week. I am praying that it works and I can get off my walker!

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@istraz34 Make sure that your doctor is aware of ANY new medicines you are going to take! Vitamins are great when used properly but can cause real problems if they build up in the body.
If you are trying to restore what the body has lost, do so, but with care. This is a gentle reminder to all of us on Mayo Clinic Connect!

Jump to this post

@becsbuddy
Yes, I believe I stated to check with doctor. If not, glad you did.

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Profile picture for ga29 @ga29

@becsbuddy I am adding my story to this thread.
I was diagnosed with PMR back in January, after requesting a referral to a rheumatologist for lingering pain in my hips and shoulders after multiple cervical fusion surgeries in July and then September.
I believe PMR is caused from stress, just my opinion.
Because I have osteopenia, I was only given 12 mg. Of methylprednisolone , then reduced to the current 8 mg.
I had a day away of driving a couple hours to watch our grandchildren play soccer, and started feeling bad. This gradually became worse, until I had unbearable pain that moved to a different place in my lower back, first the left side, then the right side, down the back of my thighs, with numbness and pain into my feet. I couldn’t walk, without my walker.
An MRI of lumbar spine showed nothing. I requested a ct scan of my sacrum because I asked AI for an opinion after putting in my symptoms, it showed I had a bilateral fracture of my sacrum, (also showed a previous fracture of my pelvis that had healed!).
There is little that can be done for this, only rest until it heals.
I am starting on a biologic med next week. I am praying that it works and I can get off my walker!

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@ga29 I a so glad you advocated for yourself and asked for the CT scan. Imagine if you hadn’t asked! Do you have any idea what caused the fractures in the first place?

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@momac59 Yes, this “autoimmune stuff IS tricky.” Prednisone plays a very important role in your body. That’s why you are tapered off slowly. If you stop too quickly , your adrenal glands may not start producing the body’s own prednisone and the adrenal glands will fail leading to an adrenal crisis. I agree that being on prednisone can be a real pain but adrenal crisis would be MUCH worse. So, please be careful!

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@becsbuddy
JUst an FYI: I’ve been on prednisone for over a year at different milligram and just realize that if you get sick or get bite by a dog which happened to me recently is that you do not heal fast!! Prednisone causes a lot of problem and the PMR that I have isn’t helping either.. IT is a long road to recovery!!!

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