Comprehensive Overview Of PMR

Posted by Mike @dadcue, Jan 3, 2025

Another video that is worth watching if you have time.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

aisp3b | @aisp3b | May 20, 2025

In reply to @dlc2025 "How do you get rheumatologist to stop prednisone and switch to Methyprednisolone?" + (show)

Just an fyi to start... I started on methlprednisolone in early December. As I wrote above, I just happened to have the Methypred in the house. After seeing the Rheumatologist she put me on regular prednisone which I started to use. My eperience with the Methypted was a lot more effetive than the regular prdnisone and I liked that it did not have to use my liver to become effective like regular prednisone. At that time I asked my Rheumy to give me a script for the Methylprednisolone. Since mid December when I started Methylpred at 20mg/day, I am now down to 5mg/day as of May 20th. I never had any bad experiene decreaseing my dose. My last decrease to 5mg was just 2 weeks ago. For thr first time I felt some very slight PMR feelings in my shoulders and neck which would disappear as I got moving in the AM. Now it is 10 days that I am on 5mg and I have no PMR symptoms. I have never had a flare up.

gem3850 | @gem3850 | Dec 27, 2025

I need the name of an excellent rheumatologist in Pgh pa

ndep | @ndep | Dec 28, 2025

In reply to @wfroslansky "I think the primary indicator is how I feel. Started at 15mg of prednisone 6 months..." + (show)

@wfroslansky Hi, I am now taking 15 mg of prednisolone for two weeks and my shoulder, legs and hip pain is practically gone but I have stiff and sore weak hands like you described and is difficult to do every day things during the day. I see your post is not recent but I would like to know when and if your hands became pain/weak free? Thank you!

aisp3b | @aisp3b | Dec 28, 2025

In reply to @gem3850 "I need the name of an excellent rheumatologist in Pgh pa" + (show)

@gem3850 Dr. Seabastian Sattui
https://connect.mayoclinic.org/discussion/comprehensive-overview-of-pmr/

Mike | @dadcue | Dec 28, 2025

In reply to @aisp3b "@gem3850 Dr. Seabastian Sattui https://connect.mayoclinic.org/discussion/comprehensive-overview-of-pmr/?utm_source=connect.mayoclinic.org&utm_medium=email&utm_campaign=digest&utm_content=summary_interest_discussion" + (show)

@aisp3b
@gem3850
I haven't met him in person. I agree that he seems like a gem of a rheumatologist. He is moving the needle and is making a difference in the treatment of PMR\GCA.

PMR is more complicated than taking Prednisone for pain while waiting for it to burn itself out.

bonandrods | @bonandrods | Dec 29, 2025

In reply to @ndep "@wfroslansky Hi, I am now taking 15 mg of prednisolone for two weeks and my shoulder,..." + (show)

@ndep Is 15 mg your starter dose? Seems like you may need a bump up to a higher dose. I believe the usual beginning dose is 15-25 mg. Are you in GB? Seems like most people are started on 15 mg there. I was started on 20 mg and all pain was totally gone. Reduced to 15 mg after two weeks and all stayed gone. I’m now down to 12 1/2 after 12 weeks and hoping to taper to 7 1/2 next week. Good luck.

tweetypie13 | @tweetypie13 | Dec 29, 2025

In reply to @dadcue "@aisp3b @gem3850 I haven't met him in person. I agree that he seems like a gem..." + (show)

@dadcue
Thx Mike…. Wish there was some way for this video to be automatically sent to anyone who signs up for this blog.

ndep | @ndep | Dec 30, 2025

In reply to @bonandrods "@ndep Is 15 mg your starter dose? Seems like you may need a bump up to..." + (show)

@bonandrods Yes my starter dose is 15 mg, I live in Belgium. After 4 days the pain in my shoulders, knees and hips did (slowly) go away, hands are still a bit sore/weak especially in the morning but I can feel it is getting better every day. I don't mind if the pain goes away slowly because the lower the starter dose, the tapering will also be less long. Thanks and good luck to you too!

trina24 | @trina24 | Dec 31, 2025

In reply to @dadcue "@aisp3b @gem3850 I haven't met him in person. I agree that he seems like a gem..." + (show)

@dadcue
Very interesting. There needs to be more Research done on PMR
Theresa

pmrsuzie | @pmrsuzie | Jun 30 9:51am

This is an update about Dr Sebastian Sattui. He has left his position at UPMC - University of Pittsburgh Medical Center.
He is now the Rheumatologist/ Global Medical Affairs Director, Autoimmune Diseases @ Novartis. He has.relocated to Madrid.
This may be the last video at UPMC. He left in June. How I know is that I live near Pittsburgh and my rheumatologist is a UPMC physician. I was able to get an appointment with Dr Sattui for a second opinion last year. I received a notice earlier this year that he was leaving.
https://m.youtube.com/watch