Welcome @kbromwell, Sorry you haven't been able to find any answers yet. From what I've read a high MCV AB level can be associated with rheumatoid arthritis .
"What is MCV ab?
Mutated Citrullinated Vimentin (MCV) Antibody - Anti-mutated citrullinated vimentin (MCV) antibody is one of several specific anti-citrullinated protein antibodies which may be used as a second-line marker of rheumatoid arthritis (RA), in addition to rheumatoid factor and anti-cyclic citrullinated peptide (CCP)."
-- https://testdirectory.questdiagnostics.com/test/test-detail/13238/mutated-citrullinated-vimentin-mcv-antibody
Yes, I wanting to be seen at the Mayo clinic in Rochester but they are still reviewing my referral to be seen. When I called they said that if the referral was accepted that it would be a long time to get an appointment to be seen. We are going in April for appointments and was hoping to get in at that time because it’s very hard for me to walk now. I just keep getting worse and the pain keeps getting more severe. I just need some answers and nobody seems willing to help me.
Yes, I wanting to be seen at the Mayo clinic in Rochester but they are still reviewing my referral to be seen. When I called they said that if the referral was accepted that it would be a long time to get an appointment to be seen. We are going in April for appointments and was hoping to get in at that time because it’s very hard for me to walk now. I just keep getting worse and the pain keeps getting more severe. I just need some answers and nobody seems willing to help me.
I think I would keep checking back with them to see if there are any cancellations or available appointments when you are at your appointment in April.
Just found out rheumatology denied my request to see them. I can’t hardly walk in the morning and my joints and muscles hurt so bad I set and cry. Not sure I can live like this much longer. I can’t believe they can’t figure out what is going on with my body. I’m so bummed right now.
Just found out rheumatology denied my request to see them. I can’t hardly walk in the morning and my joints and muscles hurt so bad I set and cry. Not sure I can live like this much longer. I can’t believe they can’t figure out what is going on with my body. I’m so bummed right now.
I've learned that inflammatory diseases have ups and downs and the downs are when we feel completely bewildered and defeated. It's helped me, and so I remind you, to remember this is also part of the disease process. Your doctors are working on this, and while getting a Mayo opinion is always worthwhile - and it's just so healing to be the Mayo environment - there's no guarantee you'd be better off in the end. Keep working with your doctors...maybe consider another option for 2nd opinion, and above all - nurture yourself!! Today is a bad day. Hope for a better tomorrow because it is possible.
Just found out rheumatology denied my request to see them. I can’t hardly walk in the morning and my joints and muscles hurt so bad I set and cry. Not sure I can live like this much longer. I can’t believe they can’t figure out what is going on with my body. I’m so bummed right now.
I've learned that inflammatory diseases have ups and downs and the downs are when we feel completely bewildered and defeated. It's helped me, and so I remind you, to remember this is also part of the disease process. Your doctors are working on this, and while getting a Mayo opinion is always worthwhile - and it's just so healing to be the Mayo environment - there's no guarantee you'd be better off in the end. Keep working with your doctors...maybe consider another option for 2nd opinion, and above all - nurture yourself!! Today is a bad day. Hope for a better tomorrow because it is possible.
Get in to see you local rheumatologist. Does not have to be the Mayo Clinic. A small town physician diagnosed me immediately in 5 min and had me on prednisone and now Kevzara.
This video was very helpful. I did not see it live and was unable to access the resources mentioned in the Chat and the followup email. Could I get a copy?
I have often thought I should have gone to the ER first thing. I dithered around for a very painful month before a doc finally lit me up with prednisone. The only way to see if it works is to try it, and a blood test to check inflammation and sediment ate.
This video was very helpful. I did not see it live and was unable to access the resources mentioned in the Chat and the followup email. Could I get a copy?
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Yes, I wanting to be seen at the Mayo clinic in Rochester but they are still reviewing my referral to be seen. When I called they said that if the referral was accepted that it would be a long time to get an appointment to be seen. We are going in April for appointments and was hoping to get in at that time because it’s very hard for me to walk now. I just keep getting worse and the pain keeps getting more severe. I just need some answers and nobody seems willing to help me.
I think I would keep checking back with them to see if there are any cancellations or available appointments when you are at your appointment in April.
Just found out rheumatology denied my request to see them. I can’t hardly walk in the morning and my joints and muscles hurt so bad I set and cry. Not sure I can live like this much longer. I can’t believe they can’t figure out what is going on with my body. I’m so bummed right now.
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5 ReactionsWow. Terrific. Thank you for posting it.
I've learned that inflammatory diseases have ups and downs and the downs are when we feel completely bewildered and defeated. It's helped me, and so I remind you, to remember this is also part of the disease process. Your doctors are working on this, and while getting a Mayo opinion is always worthwhile - and it's just so healing to be the Mayo environment - there's no guarantee you'd be better off in the end. Keep working with your doctors...maybe consider another option for 2nd opinion, and above all - nurture yourself!! Today is a bad day. Hope for a better tomorrow because it is possible.
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Helpful -
Hug
1 ReactionGod Speed. Be kind to yourself
Get in to see you local rheumatologist. Does not have to be the Mayo Clinic. A small town physician diagnosed me immediately in 5 min and had me on prednisone and now Kevzara.
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Like -
Helpful -
Hug
2 ReactionsThis video was very helpful. I did not see it live and was unable to access the resources mentioned in the Chat and the followup email. Could I get a copy?
I have often thought I should have gone to the ER first thing. I dithered around for a very painful month before a doc finally lit me up with prednisone. The only way to see if it works is to try it, and a blood test to check inflammation and sediment ate.
@heyleise, if you would like information that was shared in the video, please contact the Vasculitis Foundation here: https://vasculitisfoundation.org/
What helped you the most in the video?
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