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Anyone have Waldenstroms and Multiple Lyeloma ?

Posted by glueski @glueski, 6 days ago

Original diagnosis was Waldenstroms.
Received a second opinion that added Multiple Myeloma

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bloodguy | @bloodguy | 5 days ago

I have WM only at present. Mayo expert, Parshant Kapoor,MD recently gave a presentation at IWMF convention on multiple medicines in the pipeline and/or available for treatment of WM and I would think the same is true for MM. It is available on UTube and encouraging.

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mackenzies | @mackenzies | 5 days ago

From BMB in 2024 told I had Smoldering Multiple Myeloma and Indolent B-cell lymphoma with Plasmacytic differentiation(LPL vs MZL). I do have the MYD88 L265p mutation. Repeat BMB in May 2026 & now they say LPL vs MZL(less likely) and no Smoldering MM. I am bi-clonal and my IgG has always been higher than my IgM.

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