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lnterstital diagnosis can this be a part of autoimmune diseases?
seems like this (interstitial) could be a way of transmitting to the entire body. (i am a layman making a guess.) with all my other diseases i had been diagnosed with interstitial many years age. who can remember with everything else! at the time of the diagnosis i was being diagnosed with copd, sleep apnea , cpap, oxygen and restless leg syndrome. then came the rheumatoid and psa diagnosis (even though i have had the symptoms most of my life). and of course diabetes, high blood pressure, heart beat irregularities, stage 3 kidney, macular degeneration, glaucoma, sjogrens and if i look at my medications i am sure i can find other diagnosis. (i am a walking pill) and after all this, if a have a small mental issue do you think i will reveal it? i don't know how i handle all of this. perhaps personality comes into play? yes, i do suffer with pain, have depression anxieties and all the rest.
i am waiting for the day the doctors will take the word practice out of their title.
when i look at all this in another way: IT COULD BE WORSE. we all know that their are many other debilitating conditions . and after all this, i am still in pain, but ALIVE. and I do love you ALL. from one of us suffering souls.
it would be interesting to hear from you about this subject.
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i forgot: BEAM ME UP SCOTTIE, I NEED TO SEE BONES!
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2 ReactionsLove that show!
Hello @peach414144, thank you for opening a new discussion. Sorry you have had to go through so much. It can sometimes be tough handling what life throws at you. and I do like your positive attitude. I really think that it makes a big difference how we react to what happens in life which is not always easy. Just sharing your story here is helping others with similar health struggles know you are not alone. I had to look up interstitial and still not sure what it is other than I think that health wise it's related to tissues of organs.
Me, I just take it one day at a time for my struggles with PMR, carpal tunnel, high blood pressure, small fiber peripheral neuropathy and a wife that makes it all worth while. When I started my research for something to help with the numbness in my legs and feet for the PN, I found Connect and through Connect I found other things that have helped on my journey. One big one that I've always struggled with is eating healthy and after many years with Weight Watchers I decided I'm the one that has to change and started down the road of changing my lifestyle when it comes to food - going from living to eat to eating to live. It has helped with my blood pressure and my pre-diabetes - if there is such a thing - I always have that argument with my primary care docs.
Hoping others jump in and offer some interesting conversation that helps!
John
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2 Reactionsyes, eating healthy is prime. my favorite is: throw a whole chicken into a huge pot, (wash it first) add 5 cups celery cut large, 10 large carrots cut large, one huge sweet white onion cut small, 1 1/2 cups cabbage cut small, 2 parsnips cut medium, 8 small "gold" potatoes peeled, and 3 huge peeled cloves of elephant garlic placed on top of everything (let it sit there). notice: no salt or whatever. cook on a low flame for about 1 1/2 hours. these seven vegetables are good for everything. it is a sweet soup and very, very healthy. perhaps a piece of buttered bread to dunk or not. can also be used with noodles instead of potatoes. this is even good for a diabetic and a high blood pressure diet and on and on. what say?. good to share this easy to make dish.
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3 Reactionsalso, i have the same numbness with great, great pain in both feet up to the knees. awful.
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1 ReactionBoy does that sound yummy! Much better than the spinach and kale caesar salad I had for lunch.
i got another one: I HAVE THIS NEW DISEASE, IT'S CALLED "EVERYTHING". how is that for a winner? don't you sometimes feel like that when our body screams out to us?
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2 ReactionsThat's what my doctor told me PMR was - arthritis all over the body! I hear you - there are those days when you think "what else is going down with my body".
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1 Reactionat the age of 80 you must remember that this was about 25 years age so memory can be hazy. the doctor was referring to my lungs at this period of time. i am not a doctor nor an expert but i was told that in-between everything there is something. hence the interstitial. i must look this up again on google or wherever. i could be so wrong. must look this up again. my proposition is that if the interstitial is everywhere, then it can affect everything within the body especially i if there is an infection in the interstitial. this is just an old age mind reflecting on life. should have gone further in school studying in this field. just a dream of another generation.
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2 ReactionsJohn with your PMR does the humidity affect it. I was doing pretty good with my 5mg in the morning & 5mg in the evening. As I had said I live @ 7200' in elevation in AZ it is pretty dry up here usually no more then 20% now in the last 2 weeks our monsoons have come in & we are at 60 to 80% & my PMR it seems to have gotten worst I also now have it in both wrist joints I did have to increase the dosage to 10mg in the morning & staying with 5mg in the evening. Now in the morning the pain is much worst then it has been.
Do you think the humidity has anything to do with it?
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