Lupron: Anyone have muscle weakness and severe leg pain?
I have PC and have been on Lupron injections every 3 months for 15 months. I am experiencing severe leg pain in hamstrings and glutes. Has anyone else experienced this or tried monthly shots?
This has been getting worse for the last 3-4 weeks. I’m afraid I’ll be in a wheelchair or have to stop this form of testosterone elimination therapy.
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Oh on the other note Eligard makes your sex drive to zero you are literally chemically castrated during your treatment period.
@bonjas
The problem is that the side effects will probably last at least 9 months beyond the end of ADT treatment and could be for the rest of your life. More than half of men, especially those who are in their 80's, never recover from ADT. After 11 months I still have my side effects although they diminished some at 10 months.
@jimbo12
Did the side effects diminish at all in the four years. Mine have diminished some after 11 months. Maybe ADT's should not be prescribed if you are over 80.
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2 Reactions@guybe
I agree, actually even stand-up big fan works too, especially one that is in the shape of a column. My hubby luckily still has no side effects but my whole life I felt "hot" (not to mention during menopause) so we sleep with AC on and columnar fan near bed - it is a lifesaver. I am covered only by flat sheet during summer months - easy to uncover in a sec.
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1 Reaction@bonjas
Yes, that is how ADT actually kills and/or controls cancer - no testosterone "allowed". No testosterone = very low or no libido.
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1 Reaction@guybe
I did all of that but found myself waking up because of being cold when the hot flash went away. I spent the night removing covers and then replacing them 15 minutes later. Same problem during the day when I had to wear a jacket all day in the house and taking it off every time I got a hot flash. The cold spells proved to be worse than the hot flashes which I had 24 hours/day. After 11 months without Lupron the hot flashes are less often and not as bad.
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2 Reactions@pesquallie
Well, I still cannot walk safely on the sidewalk.
I used to walk 4 - 5 miles a day with cockiness.
I am devastated.
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2 Reactions@surftohealth88
Studies of ADT show that it only helps a small percentage of men, but almost all men have side effects. ADT can extend your life about 15% if you have the correct type of cancer.
@pesquallie thank for the warning my last shot of Eligard is in January so I have a longer way to go after the last shot the side effects lingers on for 11 months that's almost a year for the side effects to subside ( crap). I just turned 72 in April.
I've been on Lupron for 12 years (Currently 86) Lupron every 3 mos. Lupron along with Nalutimide for 11 years when it become very obvious that my bones were significantly degrading (Bone Scans), Currentlty on Lupron wiith Xtandi. HOt flashes along with blurred vision in the morning major side effects. My cancer was Gleason 7. Initial Treatment was radiation for 6 weeks - and then nuclear seeds. Ongcologist monitored very closesly and varied nalutimide according to effectiveness. When PSA went down cut the pills in half - when it went back up returned to full pill. When PSA surged one year ago I went on the Xtand which immediatly (one month) cut the PSA to 1/2 ---4 to 2 now. PSA is 0.3 lowest in 10 years.
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