Anyone ever request a new oncologist mid-treatment?

Posted by korinja @korinja, May 17, 2025

My oncologist was awesome and without a doubt saved my life by getting me into treatment very early after my diagnosis. In the months following, there has been a breakdown in communication, to the point that I feel completely uncomfortable asking any questions related to my illness or treatment. I have also only seen this person one time (all other communication is through the portal, a few phone calls early on, and now just theough the nurse), at my initial consultation. I have no question as to the quality of medical decision-making and treatment I am receiving. I just dread the idea of interacting with this individual to the point that the mere idea makes me need an anxiety med and I need a proxy to communicate on my behalf. I’m at a pause in my chemo pending surgery and wouldn’t have chemo again for 2-3 months, so it seems like this might be a good point in my treatment to request a change. Everyone I’ve asked (non-cancer patients) thinks I’m crazy to even consider it. Thoughts?

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

I’m so sorry you are going through this and personally I would change oncologists as it’s important to have a good relationship with the oncologist. Just think it’s your life whereas you are just a patient to him.. best wishes

REPLY

I requested a change in oncologists, but there weren't any who specialized in gynecological cancer. After his treatment with carb/pac didn't work I was switched to another oncologist who was conducting a clinical trial (not a the same clinic). So that was a relief. Like you, I felt uncomfortable with the first doctor. He would call me "trouble", like, "hello trouble", which he thought was a joke. I could see that I frustrated him with my questions and comments. One time he just walked out on me, never to return.
If I were you, I'd change doctors if there is one. Nurses have a bead on doctors and may be able/willing to tell you which doc. to consult.

REPLY

Diagnosed with IIIC OvCa BRCA 2 in Jan 2022, been 4.5 years
Treated w/ Carboplatin and HIPEC and then PARP
Interested in Aug 2025 article in Gynocologic Oncology on retrospective association between Ozempic/Wegovy and ovarian cancer survival. It appears to show a decrease in mortality by >40%
That is statistically huge!
Thoughts anyone?

REPLY

Here is link to article
https://www.gynecologiconcology-online.net/article/S0090-8258(25)00879-0/fulltext
For women who already have ovarian cancer, a large study published in the Aug 2025 Gynecologic Oncology journal found that GLP-1 users (Ozempic/Wegovy) had substantially improved overall survival rates compared to non-users. (>40%)

REPLY

I have changed gyno oncologist surgeon. I was told by the surgeon she found an irregular cell on my vulva and was going to remove it. I had vulva cancer was treated and this was follow up care. Instead she layered my entire vulva and labia. Its been 4 months and I still have not recovered keep having tears and fissure in my vulva and labia. I was lied to and a procedure I did not consent to was performed on me.I totally lost trust in that doctor.

REPLY
Profile picture for lathomasmd @lathomasmd

Hello Korinja,
I switched oncologists—twice! And, yes, some people think I’m a finicky witch. Cancer is scary enough; we don’t need communication barriers to make it worse.
I saw my first doctor, Dr B, at diagnosis. He explained how ovarian cancer tends to unfold and what he thought was going on in my case.
He ordered an MRI. The next day, I called for the results. I left a message. (I wasn’t expecting a response that day. I called just in case the results were available.) I called the next day—nothing. And the next.
On the fifth day, I called another doc in the same group, Dr H. He was out of town, but his office contacted him, and he called me. He heard my concerns, said he would look into it, and got me the results. So, I switched to Dr H.
Dr B called me and apologized for not getting back to me. Apparently, he had never received any of my messages. He was quite angry with his staff about the lack of communication. But I wasn’t comfortable staying with him and switched my care to Dr H.
Who seemed great, at first.
Before surgery, my primary cancer burden was in my omentum. The rest was scattered throughout my abdomen, like sesame seeds. I had three cycles of chemo, then surgery. Dr H took out my tubes and ovaries, but nothing else, not even the omentum. When I asked why not, he said it looked really good after the chemo. This didn’t sit well with me. I went to Mayo for a second opinion.
Most second opinions concur with the original opinion. I knew this and just wanted reassurance that what Dr H did was OK.
Dr K, the Mayo doc, said, “The surgery you had was what I would have done for an 85-year-old.” (I was 61.) “I would have been far more aggressive with a woman your age.” And the real kicker: “This was not standard of care.”
After I picked my jaw up from the floor, she offered to do a much more thorough surgery, with HIPEC (intraabdominal chemo). I had it done. She removed my uterus, appendix, and most important, my omentum. And pathology found active cancer in my omentum.
I kept my next follow up appointment (I honestly don’t know why) with Dr H, who had received records from Mayo, so he knew what I had had done. The first thing he said to me was, “You could be cured!”
I was so shocked and flabbergasted, I didn’t know what to say. What I wished I had said was, “Then why didn’t YOU do all this?!?!”
Nevertheless, that was the last time I saw Dr H. I made Dr K my doctor from then on.
So, I recommend second opinions. And third opinions. And switching doctors when necessary!

Jump to this post

@lathomasmd Thank you for sharing- you have probably helped more people than you realize. Kudos!

REPLY
Profile picture for lathomasmd @lathomasmd

Hello Korinja,
I switched oncologists—twice! And, yes, some people think I’m a finicky witch. Cancer is scary enough; we don’t need communication barriers to make it worse.
I saw my first doctor, Dr B, at diagnosis. He explained how ovarian cancer tends to unfold and what he thought was going on in my case.
He ordered an MRI. The next day, I called for the results. I left a message. (I wasn’t expecting a response that day. I called just in case the results were available.) I called the next day—nothing. And the next.
On the fifth day, I called another doc in the same group, Dr H. He was out of town, but his office contacted him, and he called me. He heard my concerns, said he would look into it, and got me the results. So, I switched to Dr H.
Dr B called me and apologized for not getting back to me. Apparently, he had never received any of my messages. He was quite angry with his staff about the lack of communication. But I wasn’t comfortable staying with him and switched my care to Dr H.
Who seemed great, at first.
Before surgery, my primary cancer burden was in my omentum. The rest was scattered throughout my abdomen, like sesame seeds. I had three cycles of chemo, then surgery. Dr H took out my tubes and ovaries, but nothing else, not even the omentum. When I asked why not, he said it looked really good after the chemo. This didn’t sit well with me. I went to Mayo for a second opinion.
Most second opinions concur with the original opinion. I knew this and just wanted reassurance that what Dr H did was OK.
Dr K, the Mayo doc, said, “The surgery you had was what I would have done for an 85-year-old.” (I was 61.) “I would have been far more aggressive with a woman your age.” And the real kicker: “This was not standard of care.”
After I picked my jaw up from the floor, she offered to do a much more thorough surgery, with HIPEC (intraabdominal chemo). I had it done. She removed my uterus, appendix, and most important, my omentum. And pathology found active cancer in my omentum.
I kept my next follow up appointment (I honestly don’t know why) with Dr H, who had received records from Mayo, so he knew what I had had done. The first thing he said to me was, “You could be cured!”
I was so shocked and flabbergasted, I didn’t know what to say. What I wished I had said was, “Then why didn’t YOU do all this?!?!”
Nevertheless, that was the last time I saw Dr H. I made Dr K my doctor from then on.
So, I recommend second opinions. And third opinions. And switching doctors when necessary!

Jump to this post

@lathomasmd
You were so smart to insist on 2nd and third opinions. I have read of patients who did not get their omentum removed even though it was infiltrated with metastatic cells and wondered why. I asked my Oncologist Gynecologist and he said removal of the omentum if it shows mestasis is standard of care. So if it is not removed I wonder if the surgeon lacks the skills. That operation has to be a lot more involved than a simple hysterectomy.

REPLY

It’s not lack of skill. Gynecological oncologists remove the omentum all the time. I think he was just being cavalier. Or lazy. Or tired. Or running behind. I often wonder if my odds of survival would be better if he had removed it in the first place.

REPLY
Profile picture for lathomasmd @lathomasmd

Hello Korinja,
I switched oncologists—twice! And, yes, some people think I’m a finicky witch. Cancer is scary enough; we don’t need communication barriers to make it worse.
I saw my first doctor, Dr B, at diagnosis. He explained how ovarian cancer tends to unfold and what he thought was going on in my case.
He ordered an MRI. The next day, I called for the results. I left a message. (I wasn’t expecting a response that day. I called just in case the results were available.) I called the next day—nothing. And the next.
On the fifth day, I called another doc in the same group, Dr H. He was out of town, but his office contacted him, and he called me. He heard my concerns, said he would look into it, and got me the results. So, I switched to Dr H.
Dr B called me and apologized for not getting back to me. Apparently, he had never received any of my messages. He was quite angry with his staff about the lack of communication. But I wasn’t comfortable staying with him and switched my care to Dr H.
Who seemed great, at first.
Before surgery, my primary cancer burden was in my omentum. The rest was scattered throughout my abdomen, like sesame seeds. I had three cycles of chemo, then surgery. Dr H took out my tubes and ovaries, but nothing else, not even the omentum. When I asked why not, he said it looked really good after the chemo. This didn’t sit well with me. I went to Mayo for a second opinion.
Most second opinions concur with the original opinion. I knew this and just wanted reassurance that what Dr H did was OK.
Dr K, the Mayo doc, said, “The surgery you had was what I would have done for an 85-year-old.” (I was 61.) “I would have been far more aggressive with a woman your age.” And the real kicker: “This was not standard of care.”
After I picked my jaw up from the floor, she offered to do a much more thorough surgery, with HIPEC (intraabdominal chemo). I had it done. She removed my uterus, appendix, and most important, my omentum. And pathology found active cancer in my omentum.
I kept my next follow up appointment (I honestly don’t know why) with Dr H, who had received records from Mayo, so he knew what I had had done. The first thing he said to me was, “You could be cured!”
I was so shocked and flabbergasted, I didn’t know what to say. What I wished I had said was, “Then why didn’t YOU do all this?!?!”
Nevertheless, that was the last time I saw Dr H. I made Dr K my doctor from then on.
So, I recommend second opinions. And third opinions. And switching doctors when necessary!

Jump to this post

@lathomasmd I agree with you 100%

Denise

REPLY

You have to feel comfortable with your Oncologist, so ask for a second opinion.

REPLY
Please sign in or register to post a reply.