Do most people really want to know how you're Really doing?

Posted by fritzo @fritzo, Jun 20 7:03pm

OK, I'm doing it again. Thought Hans brought up some good points about how most people who know you have cancer actually don't really want to know how you're doing...they want the heroic answer that makes them feel better.

He has some retorts to the question that probably do trigger people. It reminds me of my son-in-law, who when people asked how he was doing, would say with great intensely, "Great!" The catch was that you didn't know if he meant great in a positive way or meant it sarcastically. It would definitely would stop you for a second.

Anyway....another link to Hans column and a graph from it....

“The truth, I have come to believe, is that much of illness in modern society is performative. We have collectively agreed that sick people should remain inspirational because actual suffering makes everybody terribly uncomfortable. Nobody wants honest illness. People claim they admire bravery, but what they really admire is tidy suffering, suffering that smiles politely, expresses gratitude, posts optimistic updates on social media, and generally avoids introducing unpleasant realism into brunch conversations.”

The Curious Performance of Being Fine
https://open.substack.com/pub/nutmegphantasy/p/the-curious-performance-of-being-dbf

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

I'm happy if the doctor seems fully concerned, but he's getting paid for it.
*
As we age there are more and more of our friends and relatives who have medical situations they're going through ... and as we go through our own. I have two old friends right now going through it, and one friend's wife too. I'm on this group because I'm curious about his PC, as he was exhibiting side effects of the treatments. We seem to have a balanced view of what he cares to share and what I can stand to know. The other and his wife are both going through other kinds of cancers, actually, and as far as imminent danger and detailed treatments, have far more to say. If they published ten-page summaries daily I might read them, but y'know, there's nothing I could really do about any of it.

All three seem to be handling their situations very bravely, and I hope if and when I'm in similar shoes I can do as well.

So I just try to be supporting, and if they want to talk about it I hope I can be a friendly ear.

REPLY
Profile picture for fritzo @fritzo

@dpayton I've caught myself spilling the beans too. Then, I think that in most cases I shouldn't.

Just FYI: I have not told anyone at work because I do not want them to put me on a shelf because of the C word. My co-workers are all in their 30s and would not understand that this is all treatable. It's a work dynamic I'm navigating. My last job, I would have been totally open.

As far as friends and family, yeah, I tell 'em.

Jump to this post

@fritzo

For sure Fritzo! I tend not to tell younger folks as it just scares the hell out of them more than anything else. And like you say, if it's family I will. But I always ALWAYS try to spread the positive side of things.

REPLY

I think the read on it can go a lot of different ways, to pigeonhole it into a single way is ignoring the many different types of personalities.

• Perfunctory response. They say it because it's expected, in their mind, to inquire as to your well being. The answer is often inconsequential or at least they may not want to know the truth.
• Unsure what to say. I think a lot of people are genuinely interested in your well being but just don't know how to ask if you are nearing death using any other language than this.
• Awkward conversation. People who are not normally good at idle conversation might use this as an opener because no matter what you answer leads to a conversation. I think they are genuine in their inquiry.
• I'm your bestest friend of all your friends. These folks seem to hammer you incessantly with the question because they want to be the first to be "in the know" and "by your side" before anyone else. I know a handful of people like this. I'm unsure if they care more about you or being top of the heap.

People are people. Funny thing is that, now 18 months post RARP, I rarely get asked it any longer. It's like they feel if you don't show any visible signs, haven't brought it up yourself or enough time as passed then you are fine, all done.

Truth is that I generally don't want to discuss it with anyone who wasn't part of it from the beginning. If I run into an old friend, I'm not leading with that - and, in fact, I don't mention it at all. "How have you been, I haven't seen you in two years", to which I reply "Ups and downs like everyone, how about you?".

This is my second cancer in 15 years, I feel this summarizes it accurately in both cases so I feel like it might just be how people are - one of those four types.

REPLY
Profile picture for TurtBean @turtbean

I know we all have different philosophies regarding sharing. I tend to overshare, specifically to address the stigma that’s associated with it.

Everyone I know, if they ask and I have the time, gets a complete rundown of my bladder habits, sexual function, and whatever else is or will be going on (I’m fortunate right now in that all I’m dealing with is incontinence and ED).

My feeling is, if I’m hiding it, I’m feeding that Shame Monster. There should be nothing to be embarrassed about in having to wear “protective undergarments” - my niece, who routinely works with older folks in her job as a geriatric studies professor, taught me that phrase: “Don’t say diapers! You’re not a baby!” Gotta love her!

I own it. My family knows, my coworkers know. HR knows. My neighbors know. Hell, my hair stylist knows (and she’s been a rock of support, believe it or not). I’m loud and proud about it.

Jump to this post

@turtbean I agree. I don't think anyone should feel pressured to share, but if you feel strong enough to share, you're making it easier for the next person. If enough of us share, some day there will be no stigma around this stuff it all (it will become "normalised", as the sociologists say).

As long as our disease and its symptoms are hidden in the shadows, we're signalling to the world that they're somehow shameful.

REPLY
Profile picture for chippydoo @chippydoo

@tomf I view expectations as a set up. Perhaps it requires people to look at their own mortality which most of us don't want to do. Why didn't you help your wife get lucky that evening? More than one way to bring a smile to her face.

Jump to this post

@chippydoo My post had nothing to do with happenings between my wife and me. It had every thing to do with people around me having knowledge of what I was going through, When a friend developed Parkinson's, I looked it up and asked him questions about it. He appreciated my interest in his situation. He had someone to "vent" his feelings to. That's what my point was supposed to be, friends take an interest either through their own research or asking questions. The two friends in my original post did neither,

REPLY
Profile picture for northoftheborder @northoftheborder

@turtbean I agree. I don't think anyone should feel pressured to share, but if you feel strong enough to share, you're making it easier for the next person. If enough of us share, some day there will be no stigma around this stuff it all (it will become "normalised", as the sociologists say).

As long as our disease and its symptoms are hidden in the shadows, we're signalling to the world that they're somehow shameful.

Jump to this post

@northoftheborder Nothing shaming about having cancer. Even reproductive cancer. Interesting how talking about something that is uncomfortable can lead to shame reduction for either party.

REPLY
Profile picture for grandmira @grandmira

I would suggest that people who “brush off” illness in others are really pandering to their own fears of illness, a very human reaction. However is it not said ,” to love thy neighbour as thyself”, it surely doesn’t reflect care and concern, which we should all express to those suffering physical or any other human condition that causes that person to suffer. Showing concern is just a reflection of our desire to sympathize with conditions that could afflict any of us at any time. A word of kindness can make a world of difference to those suffering.

Jump to this post

@grandmira That's it in a nutshell. A word of kindness can make a world of difference. Everyone carries burdens. We all just need more kindness in this world.

REPLY
Profile picture for northoftheborder @northoftheborder

When I finally got home from hospital in 2022, still in a wheelchair and with a then-pessimistic life expectancy, I wrote 7 daily meditations to pop up on my phone throughout the week. They're still there. Here's my Thursday meditation:

"It's not always about you and your illness."

My cancer hit so suddenly and so hard, my family put everything on hold, and I'd been surrounded by doctors and nurses rushing in and out for so long, it was important to remind myself that that's not normal or sustainable. My life was permanently changed, but even the people closest to me needed to take their fingers off the pause button and start living their own lives again.

It didn't mean that I stopped asking for (and getting) support, or that I stopped talking about my cancer and disability; it just meant that my cancer didn't have to be the topic of *every* conversation or the centre of attention in the room *all* the time. It's definitely an adjustment, realising that something so important to you doesn't loom as big in everyone else's life, but I think it's an important step towards learning to live with cancer.

Jump to this post

@northoftheborder What an important message....also a sign that the initial crisis mode moved into something ore sustainable. So glad you had the support....but yeah, fatigue for caregivers is a very real thing.

REPLY
Profile picture for jim18 @jim18

@fritzo Smart move. In most places that would put you near the top of the layoff list. HIPPA prevents your management from knowing much about treatment even if using work insurance to pay for it.

Jump to this post

@jim18 You know...that is so true. I don't think that would have happened to me...but I also think I'd be written off.

Yeah, our HR manager is the biggest talker in the office....I've heard her tell me things that I shouldn't know. So, I definitely made sure that the only thing they knew was that I was having abdominal surgery and nothing more. As it turns out, the HR manager has had multiple robotic laprascopic surgeries...so she was actually nice...but I still didn't share beyond that.

REPLY
Profile picture for thig350 @thig350

Well, in my opinion, most folks beyond a spouse, child etc. are not particularly concerned about how one is doing when dealing with prostate cancer. It is an uncomfortable topic. I keep it close to the vest and do not share my diagnosis with everyone. Family, yes. Close reliable friends, yes. Beyond that, nope. I think people think that prostate cancer is a disease that "other people get." That is part of the problem so when someone close gets it, it seems to get weird fast.

Jump to this post

@thig350 That is totally it....with prostate cancer...things get weird fast for a lot of people.

As a culture, we need to change that so that it is as understood as breast cancer. But, us guys likely don't talk enough about it.

REPLY
Please sign in or register to post a reply.