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New to the group - but have chronic fatigue?

Posted by hkgood @hkgood, Nov 11, 2025

Hi there,

I was diagnosed at Mayo with chronic fatigue and central sensitization back in August. I am new to Mayo Clinic Connect; the internal general medicine staff recommended this group, as there isn't a specific one to chronic fatigue and the two illnesses have similarities. They said people with CF have joined the group and find it helpful.

Are there others here who have chronic fatigue and/or css, or who have both? I am wondering, generally, what recommendations and encouragement some of you may have for how to get through this time. I have never gone through something so difficult in my life?

Thankfully, many of my symptoms are improving since the diagnosis (I was very sick for one year without diagnosis), but I find myself struggling with a lot of grief lately (over loss of job, independence, finances, etc.). I feel very alone in this journey and am just hoping to connect with others.

All my best,
H

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

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4corazon | @4corazon | Jun 22 12:51pm
In reply to @kikibiree "Hello, I think I have had chronic fatigue for several years, but I was able to..." + (show)
Profile picture for kikibiree @kikibiree

Hello,
I think I have had chronic fatigue for several years, but I was able to push through. But since I came back from an overseas in February, I have been really struggling with fatigue. I used to exercise a lot, but I cannot right now
My blood work is fine.
I started taking some supplements: women vitamins, CoQ10 and NADH. Do any of you know about these? Do they help?
I'm also seeing a therapist and an acupuncturist. I'm currently on an emotional rollercoaster. Today was really hard without a break from the fatigue. Any help out there?

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@kikibiree I see you mentioned how you "pushed through". That is definitely not a good idea. As they teach at the Bateman Clinic, pacing is the key. Do a small amount, rest, do a little more if you can. But, as we probably all do now and then, dont try to push yourself or you will pay by being exhausted for hours later or even sometimes days. If I have to make a trip to the doctor, I know it will tire me so I dont do anything in the hours prior, just rest. Do my best to prepare. I hope you can learn that, too.
Have you read Toni Bernhard's books? I also read her blog on Psychology Today, I think it is online monthly. Toni's story is very touching. She has been ill since I think early 2000s. She still struggles even though she lives near Stanford, so has the best specialists.
I hope you find some help, be it doctors or medicines. Supplements did not help me.

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kikibiree | @kikibiree | Jun 22 3:59pm

Can we actually recover like Tony Morrison or Raelan Agle claim or they just want people with chronic fatigue to subscribe to their channels so they can make money?

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4corazon | @4corazon | Jun 22 4:43pm

I feel for you. I have had ME/CFS for over 20 years & have had some relapses then some flare ups. I would recommend you go to the Bateman Horne Clinic website & download some of their free materials, some are for providers, some for patients. They do a lot of research on ME/CFS & Fibromyalgia & Long Covid, they are at the forefront of treatments. Also I just read that there is a new study on the use of low dose Rapamycin. I plan to listen to their webinar when it becomes available & learn about this new treatment. I have a NP who follows Bateman Clinic providers so keeps on top of things for me. It is so hard to find providers who know anything about this so you are at least lucky that you have Mayo Clinic, who now does treat fibro & CF. I wish you the best.
Lana

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