How long does post concussion head pain and cognitive fatigue last?

Hello and happy new year everyone,

I was rear ended twice in the last three years and I am really struggling the second time with the TBI, post concussion syndrome and the returning to gradual activity. First does anyone have any experience with how long the head pain lasts with activity or cognitive fatigue? I found taking breaks every time the head pain worsens helps but it’s so frustrating as it’s painful and takes forever to do anything. Thank God that all the MRI’s and CT scans were good but I am seven months post accident and just wondering if any has experienced anything similar and has some insights. Still struggling with the memory, brain fog, cognitive fatigue, confusion and multitasking is next to impossible which doesn’t help as my career requires all of those things. My speech pathologist is optimistic and just wanted to know what is everyone else’s experienced opinions.

Thank you so much everyone and I hope you are all doing well and are having a blessed new year so far.

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Profile picture for emdlewis @emdlewis

@jenniferctbisurvivor
Yes. I’m sorry that you too are having to deal with not only your headaches, which are really more like being smashed in the head with a hammer, than it is any headache I’ve ever experienced, while also dealing with a supposed professional who isn’t taking your pain into consideration. My neurologist sent me back to work even after I explained my headaches, extreme physical and cognitive fatigue. “What? You don’t want to work because you have headaches?” In a very condescending manner. I managed two 9 hour shifts as an automotive technician before I couldn’t speak because my brain just shut down. So embarrassing and frightening all at the same time. I’m going into my 12 th week of continuous pain ranging from 4/10 in a quiet place and only focusing on one task at a time and taking breaks in between tasks, to a 10/10 with 20/10 pain spikes when attempting to do something as simple as take a shower. The sound of my voice bothers me. And when I try to verbalize my symptoms, it comes out all jumbled, and it doesn’t help that my neurologist starts talking before I get an opportunity to finish my statement. And then I forget what I’ve said and what I haven’t. I started bringing someone from my immediate family with me to all of my appointments so I have someone else to remember things for me, and help explain it all. But I still feel like my health and my recovery isn’t being respected in the manner it should. Sounds like you and I are dealing with the same frustration. If you don’t mind, I see your comment is older than my injury, how are you now. Has anything gotten better? Have you found new ways to cope? I’m asking because I’m only 3/12 months from injury. Clear CT, with a sharp decline upon returning to work 2 months from injury with reported headaches, fatigue, pain spikes, dizziness, light and sound sensitivity, speech effected, short term memory loss, emotional and instability. Has any of it gotten better for you yet?

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@emdlewis
yes, has been 5 years ago but was told that i shouldn't still be in pain...
that was 4 months after my initial fall and injuries. They found a ruptured disc. the headaches it came down to ocular migraines . broken floating rib didn't help any. as For the other issues you describe and the doctor not listening, i would be looking for another doctor. My daughter got lucky in that in her 5th try landed a good one and he treats us both. very talented younger man. i can only hope you find one that still cares about every patient that is his and treats them with respect. good luck. Have a rest of the day blessed and Ps, after time some of the symptoms have gotten better and no i did not get the disc repaired would have meant surgery and i am not for that at all after having a tumor removed from my brain.

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Profile picture for Randy Shields @randallshields56

@emdlewis
yes, has been 5 years ago but was told that i shouldn't still be in pain...
that was 4 months after my initial fall and injuries. They found a ruptured disc. the headaches it came down to ocular migraines . broken floating rib didn't help any. as For the other issues you describe and the doctor not listening, i would be looking for another doctor. My daughter got lucky in that in her 5th try landed a good one and he treats us both. very talented younger man. i can only hope you find one that still cares about every patient that is his and treats them with respect. good luck. Have a rest of the day blessed and Ps, after time some of the symptoms have gotten better and no i did not get the disc repaired would have meant surgery and i am not for that at all after having a tumor removed from my brain.

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Thank You

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Profile picture for ccmedic5 @ccmedic5

My first Concussion I was 7 yrs old. I seemed to be ok but back in the 70s and 80s we didn't run to the ER every time we smacked our head or knocked yourself out. I got older and started having out bursts and anger issues. I have dealt with paranoia, aggravation, pissed off. I became an auto mechanic and that's when I started hitting my head more and more, walk into a tire over your head, stand up and smack the hoist arm, smack exhaust systems, rear axles. Then I decided to start to learn how to play hockey. I also was an assistant coach on the team. During practice I took a nasty fall and landed on the back of my head with my body above me and drove my chin into my chest. I was out, came to in a min. Went to the ER fell out of the car and hit my head again. Had to work so went to work with what they called a grade 3 concussion. I continued to coach and started to play hockey. Got hit several times and continued to play with a headache. Then sat out for a week, went back played was good for a few and then hit again and was nauseated. Sat in the locker room till I felt better and went back out on the ice. Woke up looking at the lights. I have counted up wards of 8 concussions, possibly more. I have had a headache for the last yr and I now have some cognitive issues like memory, thoughts, mind goes blank, I hear things and see things that aren't there. I am on medications to help but the small headache which is a pain of 1-2/10, my concussion Neurologist said that that will probably never go away. It has affected my work, cant multitask anymore, I get confused and cannot think my way out. I over react to a lot, I also have paranoia more then before. I am just here to see what others are dealing with. I have had numerous MRI, CT and all show clear, I have some diminished cognitive issues per a different Neurologist.

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I have now gotten smacked in the head with 2 IV pumps during transport of a Patient up to the floor at a Hospital. I had a headache and was nauseated for three days, I had to sit for about 20 min before I could get on my feet. You just never know when something is going to accidently hit you, you need to be prepared for anything. I did call my Neurologist on the second day and he in a Joking manner told me to "Stop Banging Your F-ing Head" we both laughed but it isn't funny, He is right, now I am very cognoscente of my surroundings and I keep my wits about me no matter what. It is a lot more work when you realize that it really doesn't take much anymore to make me feel sick and dizzy .

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Profile picture for jenniferctbisurvivor @jenniferctbisurvivor

Just feeling down….has anyone been told that someone couldn’t believe that you are still not recovered yet, by a doctor and coworker in that demeaning tone that makes you feel like it’s your fault?

I have never had such a hard time returning to work everyday with all these symptoms and just functioning everyday. Sometimes it’s all I can do to just survive the severe cognitive impairments and fatigue during the workday, make it home and just cry.

Thanks for listening and letting me vent everyone, I am so much better than before and I know I have a long way to go and I won’t give up but it is definitely hard to hear statements like that and deal with people who have no compassion towards our TBI difficulties and recovering as much as possible. I will never fully recover but I am working so hard to learn all of the tools and tricks to function at the highest level possible!

Have a blessed day

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@jenniferctbisurvivor keep your head up, keep at it every day. You are the one that has to fight it and wake up every day and do what you have to, we are right here with you doing the same thing every day, it is rough. Being in EMS everybody understands what is going on and some actually help me by not saying anything when I start to lose my train of thought, they just wait until I give up. I may ask the same question again and forget what I was told earlier it bothers me more then it bothers the people I talk to about it. But you have this and dont let anybody make you feel any different. We are all strong individuals and can be stronger together

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