Perineural Cyst at L5-S1 is causing debilitating neuropathy pain

Posted by all4myhealth @all4myhealth, May 31, 2024

I am dealing with debilitating pain in my legs, feet and especially my toes. Multiple MRI's and Ct scans shows perineural cysts between L3-L5 S1. The largest is located at L5S1, the pain has become unbearable.
Mixed responses from my doctors to the causes of the pain and if the cysts are responsible for the change / intensity of the pain, varies dramatically.
When reviewing the Mayo clinic outline of nerves effected by L5 and S1 they are a road map of the areas of pain that I am experiencing. Has anyone else had similar issues with regards to Cysts ? Has anyone had cysts removed or drained to relieve the pressure on the nerves and gotten relief?
The loss of the ability to drive my car, walk, sleep or stand to cook a meal have changed my life. Each day that passes the intensity of the pain changes and I am fearful that if I do not address this sooner then later I may not recover from the damage.
Any input is greatly appreciated, if you are experiencing this my prayers are offered for you.

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Profile picture for gilkesl @gilkesl

I had an L2-3 calcified synovial cyst removed via laminectomy which was sitting on my spinal cord. The difference is dramatic. I can walk 2 plus miles. Sitting is improving- maybe 45 min.

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@gilkesl when was surgery and when were you walking 2 weeks post op? I have a synovial cyst L4/5 compressing my left l5 nerve with surgery scheduled one week from today. No one has told me what to expect. I have a garden and want to get back out asap.
I am in miserable pain right now.
Give me some hope pls

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Profile picture for swachter @swachter

@gilkesl when was surgery and when were you walking 2 weeks post op? I have a synovial cyst L4/5 compressing my left l5 nerve with surgery scheduled one week from today. No one has told me what to expect. I have a garden and want to get back out asap.
I am in miserable pain right now.
Give me some hope pls

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@gilkesl to add, I am scheduled for the MIS surgery, same day, home later that day. No one has told me what to expect and I don't want to be expected to stay in bed for 4 weeks with walking here and there.

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Profile picture for rbreaupre1 @rbreaupre1

Coming up in two days! I am excited! I hope my down time is not too long. I’m told I will be able to walk around some the first day. The pain medication will keep me from driving for awhile.

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@rbreaupre1 Hi! Did you have the surgery and did it help? and if so, who was the surgeon / hospital?

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Profile picture for swachter @swachter

@gilkesl when was surgery and when were you walking 2 weeks post op? I have a synovial cyst L4/5 compressing my left l5 nerve with surgery scheduled one week from today. No one has told me what to expect. I have a garden and want to get back out asap.
I am in miserable pain right now.
Give me some hope pls

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@swachter Wishing you a smooth and successful surgery. Who is your surgeon / hospital? I'm wondering how synovial cysts are discovered. I have pain but so far, no mention of cyst being the cause.

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