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Your experiences with radiation therapy to tongue
I have had 3 surgeries on my tongue for PVL (Proliferative Verrucous Leukoplakia) which is an aggressive lesion with a high transformation to. I will see my ENT surgeon in 2 weeks to discuss next steps because a segment of cancer remains at the back of the lesion and one therapy brought up is radiation if further surgery is impracticable.
Question: what has been your experience with radiation therapy? I have read a lot of information about immediate and long term side effects.
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Yes, I felt unsettled in some ways plus anxiety initially but I am coming to terms with this new recommendation. I am having a CT scan of chest and abdomen this morning and I hope it be reassuring. I’ll meet with my surgeons next week.
My BIL saw the drs at vanderbilt and his esophageal stenosis has returned (after 2 dilations this year) and they have referred him to someone with a long waiting list (next February!) Does anyone know of someone who can help him keep the esophagus open? Any experience you can share would be so very appreciated.
Dry mouth. Burns on skin. Dead bone in jaw. Removal of molars in some cases due to easily getting cavities and the risk of getting dead bone (osteoradionecrosis)..
however my cancer had covered a large part of my tongue and lymph nodes and required the maximum strength dosage of radiation 35 rounds and chemo. I suffered a bit but am really doing well now. It’s a journey things happen over time and the doctors were there every step of the way. Mayo did save my life as it had also spread into my lungs. I had two surgeries to remove the nodules in my lungs. I hope this info helps and remember my case is a worse case scenario. Talk to your oncologist! They will tell you about the pros and cons of radiotherapy.
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