Your experiences with radiation therapy to tongue

Posted by healthydeb @healthydeb, Jun 11 4:28pm

I have had 3 surgeries on my tongue for PVL (Proliferative Verrucous Leukoplakia) which is an aggressive lesion with a high transformation to. I will see my ENT surgeon in 2 weeks to discuss next steps because a segment of cancer remains at the back of the lesion and one therapy brought up is radiation if further surgery is impracticable.
Question: what has been your experience with radiation therapy? I have read a lot of information about immediate and long term side effects.

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healthydeb | @healthydeb | 8 hours ago

Yes, I felt unsettled in some ways plus anxiety initially but I am coming to terms with this new recommendation. I am having a CT scan of chest and abdomen this morning and I hope it be reassuring. I’ll meet with my surgeons next week.

carlajones101 | @carlajones101 | 5 hours ago

My BIL saw the drs at vanderbilt and his esophageal stenosis has returned (after 2 dilations this year) and they have referred him to someone with a long waiting list (next February!) Does anyone know of someone who can help him keep the esophagus open? Any experience you can share would be so very appreciated.