Worse Neuropathy After EMG Test?

Posted by joslyn @joslyn, Jan 8, 2022

I had an EMG test done four days ago, and my neuropathy pain has been MUCH MUCH worse the last three days. Anyone else? Suddenly, none of my creams, meds, and devices work to reduce the burning and tingling. What can I do???

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for arcuri24 @arcuri24

I share your sentiments about doctors. Also, today I asked my primary care doctor if research was being undertaken to find a cure for neuropathy and he said yes it is being done. Then, why do we never hear about it? We do learn of other areas of research for other diseases. Are we a forgotten group? It sure seems that today's doctors have almost zero bedside manners. If anything, I come out of these doctors visits more troubled than before I went in. I seem to get better support and info from this support group.

Jump to this post

Yes, research has proven that there is absolutely no cure for PN and its effects. All we can do is adjust our lives and deal with it. PN made me retire early as my weak feet couldn’t get the brakes down properly and when you’re landing on a 6000 ft runway at 110kts, you need to get the plane stopped. Hang in there people.

REPLY
Profile picture for cit10jetjockey @cit10jetjockey

Yes, research has proven that there is absolutely no cure for PN and its effects. All we can do is adjust our lives and deal with it. PN made me retire early as my weak feet couldn’t get the brakes down properly and when you’re landing on a 6000 ft runway at 110kts, you need to get the plane stopped. Hang in there people.

Jump to this post

We all have a tendency to say "...there is absolutely no cure..."
Ivig, however, has proven to be quite effective in the treatment of certain types of neuropathy.
It is absolutely crucial that we are properly diagnosed.

REPLY

I had an EMG performed last summer with no apparent side effects. Since it is non-invasive, I can't imagine any long-term problems. However, I tried to have a trial of a SCS last Fall. About two months after that, I began to feel all kinds of neuropathic symptoms develop in my legs and feet. Was it that invasive procedure that caused all the new symptoms? Who know?(Only the Shadow knows)

REPLY

My NCS and EMG left me in terrible pain for about 4 days. I could barley walk.
This confirmed my suspicions i should never have been given a SCS, and it strengthend my resolve to remove it...didnt have much choice my body was rejecting hardware plus I couldn't ever use Stimulator again. Hope you feel better.

REPLY
Profile picture for bazzinga1234 @bazzinga1234

Did you find that the EMG test is extremely painful?
It’s electric shocks thru your body to find nerve damage?

Jump to this post

@bazzinga1234
I had the EMG test yesterday. I was dreading it because of so many comments about pain. I had no pain at all. My test was a bilateral on legs. Today I met up with someone who had the test recently. He too did not experience pain.

REPLY
Profile picture for mecha @mecha

Creo que no siempre ponen las agujas.Me niego a hacerlo y me han dicho que me lo harían sin las agujas.No se,pero de todos modos no me convencieron a pesar de decirme que sería muy baja la intensidad de la descarga Es una medición no un tratamiento.No me interesa.

Jump to this post

@mecha They can do it without needles, but it doesn't measure the same things. Without needles, it covers the surface neuropathy. I've had them done both ways. Today I had a repetitive nerve study then the upper half of an EMG. They did the RNS on my trigeminal nerve and I thank God that my neuropathy isn't in my trigeminal nerve.
I am exhausted from the testing we did do and my arms don't want to work.

REPLY
Profile picture for aridyn @aridyn

@mecha They can do it without needles, but it doesn't measure the same things. Without needles, it covers the surface neuropathy. I've had them done both ways. Today I had a repetitive nerve study then the upper half of an EMG. They did the RNS on my trigeminal nerve and I thank God that my neuropathy isn't in my trigeminal nerve.
I am exhausted from the testing we did do and my arms don't want to work.

Jump to this post

@aridyn debo confesar que soy cobarde y que me he negado a muchos estudios en los que suponía que iba a sufrir o por lo menos no pasarla bien. No tengo la fecha exacta en la que empecé a sufrir la neuropatía. Pero debo reconocer que siempre me negué a exámenes profundos. Supuse con charlas médicos que lo mío era irreversible. Y me negué siempre a exámenes donde la electricidad intervenía. Soy muy sensible a las descargas eléctricas. Tal vez sí me asegurasen que pueden solucionar mi problema me sometería a una intervención con descargas eléctricas o donde intervenga la electricidad. Pero nadie me lo ha asegurado. Soy ya una persona grande y llegué hasta aquí con ese problema. Solo me prestaría a nuevos estudios si en ellos no interviniese la electricidad. Me considero cobarde y lo confieso.

REPLY

I had two EMGs, one week apart. After each EMG, I experienced neuropathy for the first time ever. First in my feet/hips, and then in my shoulders, arms and hands. The neurologist misdiagnosed it as PMR, but the PMR treatment of Prednisol provided complete relief within 24 hours. So basically, I had a huge autoimmune system response. Unfortunately, the symptoms returns after being on Predinsone for about 6 months with a tapering dosage. At times, it completely disappears, but eventually it returns.

I now follow a strict anti-inflammatory diet and that helps a lot. Any sugar intake or other heavy carb intake creates strong, painful symptoms.

I was eventually diagnosed with Thoracic Outlet Syndrome, and surgery for that eliminated the symptoms in my arms and shoulders. But my hips and legs were still a big problem until I found out that I also had Stage 4 Lyme's disease. You can easily get a blood test for that with or without an MD referral. My Lyme's disease was treated with Doxycycline for 10 days, and that resolved the lower extremity neuropathy. Late-stage Lyme's causes systemic neuropathy but the disease is often overlooked by doctors because it is rare, especially if you don't live up in the northeast. (In Texas, they will tell you there is no indigenous Lyme's disease, but non-CDC Lyme's disease trackers will inform you that there were actually over 2000 cases reported yearly! CDC says only 21 in 2024...) So my suggestion is that you look for Lyme's or a similar bacterial or viral infection that your body may be constantly suppressing. I frequently had enlarged lymph nodes come and go about every 5 months, over a 4-year period. That was the Lyme's disease! We just never got it isolated and treated. Look up Polymyalgia Rheumatica (PMR) too. If you have that, Prednisol treatment is awesome. Also, Tramadol will knock out the foot symptoms for about 30 hours...take it at bedtime and you probably won't need it again for about 3-5 days. Lastly, sciatic inflammation or C3-C5 arthritis can also contribute to excessive inflammation that is just waiting to be triggered!

REPLY
Please sign in or register to post a reply.