Worse Neuropathy After EMG Test?

Posted by joslyn @joslyn, Jan 8, 2022

I had an EMG test done four days ago, and my neuropathy pain has been MUCH MUCH worse the last three days. Anyone else? Suddenly, none of my creams, meds, and devices work to reduce the burning and tingling. What can I do???

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marcel8 | @marcel8 | Mar 18 5:47pm

In reply to @marcel8 "What is SAN? Does that show that I’m new to this?" + (show)

Sorry I missed your statement in your first response!

allegheny | @allegheny | Mar 19 7:30am

In reply to @artemis1886 "When a doctor repeated mine he kept turning up the amps and burned my legs. He..." + (show)

So sorry to hear this, however it just confirms my belief that doctors today just want to rush you in and rush you out. Most are governed by large corps, more patients in a day more money in their pockets. Also, could it be DEI? Neurology is a medical field that is very complicated and changing daily, Drs cant keep up, my opinion, or just dont care. Maybe AI is the answer.... Best Wishes to you...........

allegheny | @allegheny | Mar 19 7:35am

In reply to @mrmacabre "I've had 3 EMG tests performed on me by 3 different neurologists in the last 10..." + (show)

mrmacbre, can you share why 3 emgs? Did results change? On going treat change? Most painful procedure ever, for me.....everyone is different. Just curious why 3 and treatment changes? Thank You

marcel8 | @marcel8 | Mar 19 8:23am

In reply to @allegheny "So sorry to hear this, however it just confirms my belief that doctors today just want..." + (show)

What is DEI?

drfoot | @drfoot | Mar 19 9:51am

Hello
Surgery to remove 40 lymph nodes above the clavicle.
Results partially severed Spinal accessory nerve leaving me with a weak trapeius muscle and shoulder drooping.
Constant nerve pain like popcorn all over my upper body.

allegheny | @allegheny | Mar 19 12:56pm

In reply to @marcel8 "What is DEI?" + (show)

Diversity, Equity, Inclusion

mrmacabre | @mrmacabre | Mar 19 4:20pm

In reply to @allegheny "mrmacbre, can you share why 3 emgs? Did results change? On going treat change? Most painful..." + (show)

Mostly due to my neurologists not being able to determine the cause of the neuropathy in my feet. I'd be referred to another one, and they always wanted to perform the test themselves instead of looking at the results from the previous test.
My last neurologist did this test, along with some blood tests, and a skin punch biopsy on my lower legs, and everything was "normal", hence the diagnosis of idiopathic poly neuropathy. It took him over 2 years to come to this conclusion.
After that, he basically said he couldn't do anything else for me. He has since retired.

kimegraves | @kimegraves | Mar 20 7:58am

Hello all, my name is Kim and I have read many of your posts regarding peripheral neuropathy and I am so sorry to hear the pain and discomfort you are having. About four years ago I was diagnosed with CIDP and it was miserable, pain, numbness, tingling, and weakness to the point of difficulty walking. I have to say thank GOD for my neurologist! My diagnosis was confirmed by EMG, lumbar puncture and MRI. I was immediately started in gabapentin at very high doses and IVIG infusions every two weeks. The gabapentin made very very drowsy but did relieve the pain. Over the last few years my gabapentin dose was decreased and I started myself on ALA. I also have attempted to decrease my sugar and carb intake.
Today I continue with my gabapentin, IVIG, and ALA. My pain level has really diminished and I have to say thank you to my neurologist and my infusion nurses… I pray that you all find relief.
Kim