Any phrase, idea that helped you navigate life with epilepsy?
Good Morning to All!
Has anyone in your life ever shared something with you that stayed with you — a phrase, an idea, a way of seeing things — that helped you navigate life with epilepsy?
It doesn't have to be profound or polished. Sometimes the simplest words land the deepest.
I'd love for this to become a little collection of wisdom we've gathered along the way — from all the people and places that have helped us keep going. Feel free to share as much or as little as you'd like.
Chris
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@santosha one other reflection: gratitude. I just turned 81 last month. considering my legacy of fatal heart disease on my father‘s side of my family , I never expected to live nearly this long. I’m so greatful for this unexpected longevity that the seizures are just one more bump in the road.
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7 ReactionsThanks wish I could stay awake
@santosha
I’m glad you know when to let fear served its purpose without letting it take over your life! We will all leave the world one day, it’s just a matter of when. I just want mine to be fast, quick and painless. And let it be a celebration of life lived instead of a life gone.
I simply chose to take life easy and Kerry had taught me to sometimes take my hands off the wheel a little and trust others they can manage even when I’m not around. That’s what made one a lot less stressed, and made me smell the flowers more.
Admittedly though, many a time it’s not me who’s doing the worrying. For e.g I dare to do what you’re doing currently. But family members are the ones worrying.
Cheers,
Louis
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1 Reaction@larrywr
Yes all AEMs can have depression as side effect thus that’s why your neurologist’s 1st question to you during every check up will be “how do you feel?”. It’s a sign to keep an eye on. Don’t overlook it, and to highlight it. It’s a must.
Cheers,
Louis
@frankv
Please stay off ALL forms of alcohol for all AEMs. I know it’s hard. I hadn’t touched even a drop of beer since the day I had been diagnosed with epilepsy.
Cheers,
Louis
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2 ReactionsLouis, My neurologist is OK with one drink a week. So far so good.
Frank
@louissc
@frankv
Good advice Louis. Not only because of potential increased AED side effects but because it's also a toxin and carcinogen and there is no safe level of alcohol consumption according to the World Health Organization.
Take care,
Jake
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2 Reactions@frankv
Hi Frank,
Haha maybe my neurologist is more strict.
Cheer,
Louis