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I feel like I’m slowly dying and nobody is helping
I’m at a complete loss. I feel like this is my one last ditch effort at reaching out for support. I only had Covid once back in the summer of ‘22. I was very ill for over 6 weeks and it affected my heart for about a month afterwards with pericarditis and tachycardia. I thought I made a full recovery because I was completely symptom free for over a YEAR. This past August I moved and a week afterwards I became ill again, (no covid but a myriad of other new symptoms including the return of heart issues). Since then I have progressively gotten worse. I’ve had every test done under the sun including an endoscopy, colonoscopy, MRI of my brain, countless EKG’s, tons and tons of bloodwork…I could write three paragraphs on all of the doctors and tests and debilitating symptoms. I was diagnosed with POTS in October. I have lost over 50 pounds and cannot seem to gain weight and I am continuing to lose weight. Nobody has answers except to take a beta blocker which lowers my already too low blood pressure and makes me feel even worse. I’ve been to the ER almost 10 times. I feel like everyone thinks this is psychological and they continue to gaslight me. Why are there zero resources for people dealing with this? I’ve been unable to work now for over 6 months. I’m living alone and it’s becoming hard for me to even care for myself. Where is the help? Why have we been forgotten? I have become suicidal every day because of how ill I am without any support. There is only ONE Post Covid Rehabilitation Clinic here in the entire state of Washington and I’m not scheduled to see someone until June! My heart feels like it’s failing and getting worse by the day. I don’t think I’ll be alive by June. Can anyone help me? I’ve joined the Dysautonomia International group but everyone in there has at least someone who is supporting them. My family has been awful, making it out to be severe depression or that I’m exaggerating to get attention since all of the tests come back negative. They tell me to drink more water, eat more salt and exercise. I went to the gym every day following the POTS protocol back in November and now my heart is much much worse. Someone please help me.
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@pattig09 i started developing stomach pain about a month after getting covid in 2020.told my dr.nothing done or looked for.I started taking tums big time.Then Pepto,then tylenol.Anything to stop the developing pain.6 years in now...got an endoscopy and colonoscopy.Found 10mm polyp in there.Removed.ALL pain went away.Within the next day.Wish I'd know about this way back when.I'm 6 ft.WAS 175lbs at the onset of covid.Now...6 years in...135 to 140.I'm eating,but nothing like before.I want to get back.At least I can still treadmill and that really is a good thing.I'm going to keep pushing through.I'm 'almost' clear of things.Taking NAD and NAC for mental help.Seems to be helping my brain some.We'll see.Most of my 'recovery' things I got from Dr Paul Anderson on youtube.Been following him for several years now.He IS awesome.Anyway...God Bless and hang in there with hope.
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1 Reaction@suecedar1028 I caught covid in spring of 2024 and these symptoms stayed and got worse: fatigue, dizziness, shortness of breath, brain fog, some muscle/joint pain, and GI tract symptoms. I used to hike, backpack, run, and lift weights. Now I mostly stay home and rest. My house is dirty and the yards need help. I can cook simple meals but it's a struggle to do things. "Are you still tired?" and "You look ok" are common comments from friends. I've started to avoid socializing because I'm tired of people looking at me cross-eyed.
In the past two weeks, I've been taking tributyrin and various prebiotics every day, and my gut symptoms like diarrhea have gone away. I'm hoping that the immune system might heal some with these new supplements. I have tons of supplements, which mostly don't do anything.
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4 Reactions@h2998sc I had the same goal as you, stop the recurring and 'growing' pain. I just had my 5 year endo and colon inspect today! Tests today were great; no polyps or signs of infections; pancreas was normal. That just leaves dealing with the liver lipids that showed up when my T- Cell count for NK cells drop to very low levels; which caused storage of spike fragments in the liver (and my sinus cavities too). Since I began using taking 2 Glutathione capsules a day, my mid section pain is nearly gone. I can say, this peptide did result in energy improvements and the ability to sleep through the night again. Micro surgery removed the problem in my sinuses. I like to refer to my solutions as vacuuming out the spike protein residues. Daily probiotics and weekly dose of 50,000 U of D2 restored my gut health. Immunity is building back up to close to normal. I know Dr. Anderson's work on LC and used him as one of my resources when speaking with my doctor.
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2 Reactions@oly78 Do you have a thick yellowish drainage from the sinuses; something that looks like a long tube of goo? Do you use a daily nasal flushing, like battery operated Navage machine? If you do what gets deposited into the collection container? Last, have you tested the phlegm with a Covid strip?
@suecedar1028 I have been having symptoms for a couple of years. I am so tired of fighting it, I just sit in my chair at home or go to bed. I can't stand long enough to pour myself a glass of water
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1 Reaction@pattig09 I had that gooey stuff when I had active covid, It never occurred to me at the time to test it. I use a neti pot and that makes me feel so much better. No coughing then
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1 Reaction@pattig09 No, not really anything like that. The mucus is pretty much white or clear, so that causes doctors to completely dismiss it. I can tell you, however that it is quite viscous and is mostly a post nasal drip drainage, but sticky and terrible. At times, anything I can “hock” up sometimes has been like slimy pearls… TMI, but you asked.
I am pretty sure I am one of the people holding a COVID reservoir in the nasal passages, but western medicine and medicine in general is too lacking, even 6 years in - so like everyone else I pray and wait.
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2 Reactions@juniper10 Hi, I'm so glad that I've discovered this forum. I too am tired of others not understanding what I'm going through. I was also very physically fit and active pre-covid and the dreaded covid vaccines and now I have to hesitate every day before even leaving the house to just run a simple errand! I rarely socialize anymore and I was always on the go before being diagnoised with long haul covid /vaccine injury, making plans to get together with friends and often hosting. Now, well I'm always exhausted and in my case I have very severe joint pain! Everything seemed to turn upside down for me very suddenly with the 2nd booster in 2022 and so did high BP which is something I had never had. If anything my BP was normally a bit on the lower side.
Prior to all of this I was an advanced yoga student 🧘♂️and after retiring in 2022. I was pretty much in a yoga studio or hiking each and every day.
This has significantly affected my quality of life! 🙁 I've been doing the prebiotics as well as way to many supplements to count! I am also on a long course of antibiotics for positive symptoms of Lyme disease which Drs feel could have been reactivated after possibly laying dormant in me for years. It's all much to much.
I'd be very curious to see if anyone else has encounted something similar? It's so upsetting as anyone going through this madness knows! Sue @suecedar1028
@truwomandi - what the heck do we do? Needless to say, it's so incredibly depressing which doesn't help matters. It takes all of my energy to just take a quick shower, let alone do what used to be my daily routine of trying to put on a little makeup and hair. I always took pride in the way I look. Now I can barely bring myself to look in the mirror. I just look so worn out and exhausted. I am very tired of fighting this too. Exhaustion from Long haul covid is like nothing else I've ever experienced. The exhaustion is absoultely beyond. I guess I[m hoping for a magic potion (that hasn't seemed to be discovered) but I don't know that theres anything short of prayers for us all that are going through this, and to try to keep a positive attitude!
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3 Reactions@suecedar1028 Always nice to know that at least you are not alone.
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