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Post-COVID: I feel like I’m slowly dying and nobody is helping
Post-COVID Recovery & COVID-19 | Last Active: Jul 10 7:25am | Replies (126)Comment receiving replies
@juniper10 Hi, I'm so glad that I've discovered this forum. I too am tired of others not understanding what I'm going through. I was also very physically fit and active pre-covid and the dreaded covid vaccines and now I have to hesitate every day before even leaving the house to just run a simple errand! I rarely socialize anymore and I was always on the go before being diagnoised with long haul covid /vaccine injury, making plans to get together with friends and often hosting. Now, well I'm always exhausted and in my case I have very severe joint pain! Everything seemed to turn upside down for me very suddenly with the 2nd booster in 2022 and so did high BP which is something I had never had. If anything my BP was normally a bit on the lower side.
Prior to all of this I was an advanced yoga student 🧘♂️and after retiring in 2022. I was pretty much in a yoga studio or hiking each and every day.
This has significantly affected my quality of life! 🙁 I've been doing the prebiotics as well as way to many supplements to count! I am also on a long course of antibiotics for positive symptoms of Lyme disease which Drs feel could have been reactivated after possibly laying dormant in me for years. It's all much to much.
I'd be very curious to see if anyone else has encounted something similar? It's so upsetting as anyone going through this madness knows! Sue @suecedar1028
Replies to "@juniper10 Hi, I'm so glad that I've discovered this forum. I too am tired of others..."
@suecedar1028 I might suggest you talk to doctor about 'doubling up' on the probiotics during this period with the antibiotics to keep your gut healthy. Perhaps drinking a Yacult (liquid high probiotic yogurst) each morning!
@suecedar1028 my health started going down hill after my 2021 second Covid shot. The left side of my face began flushing and has never stopped. My left salivary gland was swollen for four months. I felt like I had a fever off and on for those four months also, but when my temp was taken it showed no fever. Long story short, that's when my Mast Cell Activation Syndrome began I believe and every time I get the flu, or any virus my health gets permanently worse. But I've just discovered all these symptoms I have (flushing, itching that begins and ends spontaneously, bloating, edema, fatigue, brain fog) are those of Mast Cell Activation Syndrome. I started the first line treatment of zyrtec and pepcid taken together twice a day. After a few weeks my face flush was fading, gut bloating significantly better so I've read if symptoms improve from this it is likely Mast Cell Activation Syndrome. Unfortunately, to get those results I had to take meds twice a day and I started having serious short term memory issues so I had to stop. Memory issues are improving since stopping about a week ago. Now I'm on the hunt for someone to prescribe cromolyn sodium, the next most common treatment for MCAS. I was very active prior to that 2nd covid shot, but was required to take it because I work in a healthcare company. Kim
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@suecedar1028 Reactivation of dormant viruses is something I have found to be one of the symptoms of LC. I had Epstein Barr Virus reactivated and Parvo (I fostered dogs for several years). I was tested for Lyme, HIV, RA, Lupus and all the others. I was told I had RA. I had blood work done several months ago and the RA IgG was no longer there. I did not test positive for any of the others...This virus mimics other autoimmune diseases. That is what I have found.
I used to run every morning with my dog. I was in the best shape I have ever been in. Now, I am in the worst shape I have ever been and I am a recovering alcoholic, so when I stopped drinking, I was in pretty bad shape. There are mornings, now, when I wake up and feel terrible, worse than a hangover.
It is such a brutal virus. I try to think of what I am grateful for and that can lift me up, for a little while anyway. I also understand the anxiety and depression. I take meds for depression now. This virus does affect the whole body. I am so hopeful that there will be a breakthrough soon. Hang in there.