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Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
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@muncie22
I’m in constant high pain. I take an extended release tramadol once a day and a regular release tramadol as needed. It definitely takes the edge off, but I’m never pain free. I take klonopin (I know that’s spelled wrong) to help me sleep. I’m heading to bed now. I pray that we both get some rest.
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2 ReactionsHi,
My name is Rick. I’ve been diagnosed with CPPD after a 3 year bout with PMR. Since I had significant side effects from a couple of years on Prednisone, I am not wanting to use it for the CPPD. I tried Hydroxychloroquine but had a terrible allergic reaction. Rheumatologist is suggesting Colchicine or Methotrexate. Does anyone have experience with these drugs or an opinion about what worked for them?
@hk3jnic5y0okl2 thank you for you information. Pain that doesn’t show gets very little understanding. Especially back pain. How many times have you been told that you “look fine?”” Have a great time with your travels.
@muncie22 I had surgery on Friday the 13th in August 1976. I went thru HELL for 20 years. I had a husband that was gone on business much of the week and 3 sons 11, 14and 16. Life was hard and thought a lot about killing my self. Finally I was sent to a pain management doctor. That was when a doctor could prescribe as much pain meds that he thought you needed. I was so glad to get help. It didn’t even have to kill all my pain. Just to give me some relief. As the years have passed my life changed. My sons went off to collage, married and have families. My husband died 26 years ago. I take much less pain meds now. I used to take 3 - 80 mg of OxyContin and 2 -40 mg of OxyContin for break thru pain. There were more pain killers but that’s what I took for a long time. Now I take 2- 40 mg and 10 mg OxyContin. I have serve emphysema so I am afraid they may cut that. I am HOT when no one is. I think it has messed up somehow to cause this. Sorry I have about written a book. I really mean to say hang in there. I KNOW how rough you have it but it’s not much help today but sometimes you can do like me. Hang in there and time heals some of the mess a surgeon did to you. I would never have anything but I neurosurgeon now. Live and learn. . Let know how you are doing. I really care. Mine got easier and I pray you’re will also.
@barbaraspainhour I agree with you about pain meds. People who take them to get high or what ever they get from taking them makes me angry. So many suffer because they can not pain relief.
@linda86
I so agree.
I have had pain on the bottom of my feet for decades.
Back pain for decades.
It’s just part of my life.
There are multiple problems with my spine but not bad enough for intervention.
I cannot stand still for very long before the pain gets much worse…. like waiting in a grocery line.
After being in bed all night I am quite stiff and sore.
It takes some time for that to abate.
I have to be careful the way I sit etc.
I can manage my daily cleaning, cooking, laundry etc but it would be wonderful to have a pain free day.
Walking seems to help. Being stationary makes things worse.
But low level pain is my companion.
I am grateful though that I can still carry on.
@kayraymat 4 swallows of prune juice every morning before coffee !
@linda86 YOU ARE NOT CRAZY!! I suffer from that side effect as well. It is not menopause. It is not hormonal. It is a side effect of high-dose opioids. It drives me crazy too! Everyone is fine and I am burning up on fire sweating to death like it’s 110° inside. It is by far the worst side effect of the medication’s. I’m sorry you are suffering that and thankful to know. I’m not crazy either! I just wish I had a better answer for a resolution!
@kayraymat, I have experimented enough to find a routine that works for me. I take docusate sodium 100 mg four times a day. Just the stool softener by itself. I take one Senna vegetable laxative in the morning and one at bedtime if needed. 1 teaspoon of Fiber one in my tea in the morning and or evening if I have another cup. I don’t experience any harsh laxative feelings, or reactions with that routine.
@gypsyblue I noticed you take senna. My pain doctor told me to take that. All natural and no side effects. Now they have me on one for people who take pain meds. Sometimes I think they must own an interest in these medicine company the way they want you to take the newest and most expensive meds they have.