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Your experiences with radiation therapy to tongue
I have had 3 surgeries on my tongue for PVL (Proliferative Verrucous Leukoplakia) which is an aggressive lesion with a high transformation to. I will see my ENT surgeon in 2 weeks to discuss next steps because a segment of cancer remains at the back of the lesion and one therapy brought up is radiation if further surgery is impracticable.
Question: what has been your experience with radiation therapy? I have read a lot of information about immediate and long term side effects.
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@healthydeb
Welcome!
I had 33 rounds of agressive radiation for tongue tumour. I'm 3 years out NED! I can say post tx was such a raw deal. For 19m I felt I was on my death bed. Every story is so unique but we can all come together and share a common bond. Thinking of you as your journey begins.
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2 ReactionsI'm 20 years out after 42 rounds of radiation, chemo, and surgery. Radiation is the gift that keeps on giving. Everyone seems to have a different experience, but no one enjoys the present. It can get better, so I would ask what my chances of surviving are should I forego treatment. In my case, I wouldn't be here if I hadn't. We are all dealing with a deadly disease, so I hope your choice is clear. Take care.
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4 Reactions@zenren14
My goodness that is life altering for sure. I will have a follow up appointment in 2 weeks with my surgeon. He will have met with the Tumor Board so all the experts will weigh in. I appreciate you taking the time to reply. I hope you feel better every day!
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