Giloblastoma brain tumor

Posted by kjsthljc1 @kjsthljc1, 3 days ago

My husband, 74, woke non verbal March 28 and was diagnosed at Duke hospital with a grade 4 giloblastoma brain tumor. He had surgery April 13, was sent home 1 day later, was home for 17 days then had a stroke, was hospitalized again for 8 days then died in hospice 3 days later. He had no signs of this, we were convinced with surgery he would get 10-12 months but a total of 45 days is all he made it. He was actually the best the 2 days prior to surgery, never the same after. His death was absolutely horrible and I am now struggling being without him after 56 years of marriage.

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kylebar | @kylebar | 2 days ago

I am so sorry to hear about your loss. GBM is a cruel disease. I lost my husband four years ago to GBM. He last 107 days after his surgery. I have forever been changed by his death. We were together for 25 years. I miss him every day. I had very little support from friends and family. I even had some long time friends ghost me. I wish you the best. I hope you have some good support from friends and family.

judyandchloe | @judyandchloe | 1 day ago

This is just terrible. I’m just so sad for you and your family. Your entire life has been upended and it’s hard to know what to do, let alone not see that face.

Reaching out to this community is an excellent way to find a lot of care and heartfelt support.

A family member with the same diagnosis-a sibling -will get his post op mri report soon-the waiting is just plain awful.

I truly believe that cancer is the devil on earth.