Living with Neuropathy - Welcome to the group

After I posted my enthusiasm about using a Bullet to make Smoothies with raw vegetables and fruits, my medical team advised me against it for now, due to my ongoing investigation into Crohns/ulcerative colitis and inflammation alerts on my lab tests.
Duh. Don't know why that never occurred to me, since I can't tolerate raw food at all right now. Duh again!
Lol. Oh well, under all this manure, there must be a PONY somewhere!

@avmcbellar
I was concerned about Diabetes, cholesterol & blood pressure so I lost 90 pounds. Weighed 227 and went down to 134 but gained a few pounds. Everyone thought I was sick or we're asking if I had cancer. However, I ate candy or some type of goodies every day. I bought me a 5 pound Hershey chocolate bar to celebrate with when I reached my 90 pound goal. I thought for sure I’d eat it but I still have it. Of course I have more than enough candy cookies pies pastries and junk spread around so no emergency. Someone just sent me a box of fudge today for my birthday and it sure is GOOD!!!
Take care,
Jake

@bustrbrwn22
Good Morning,
I wonder if you had Stevens Johnson Syndrome a rare side effect of Lactimal and other Anti-convulsants.
if by chance you are of Asian dissent it would be a good idea since you had this reaction to be tested before you’re put on any medication that could cause Steven Johnson syndrome which can be life-threatening.
Jake

@jakedduck1 @sunnyflower i feel very strongly about lamictal/lamotrigine. While on it I first developed a rash, next time blisters started appearing on my neck and the ER doc wat bed as they spread rapidly down my arms and torso. He showed me a pic on his cell
And said it was flesh eating bacteria nothing he could do pumped me full
Of Benadryl and sent me home 8 hours later. Then the seizures started and my psychiatrist still said to stay on my lamictal. After one seizure I had to crawl like a snake to get around my house and laid on the door jamb to let my dog pea. After a week no exaggeration I could finally recite the alphabet and read some words. It took many weeks to learn to read again. I simply lost knowledge of some letters of the alphabet and couldn’t sound out words. I then started flopping on the floor seizures with still having to crawl like a snake that lasted for days. I stopped
The lamictal and have been seizure free for 3 years as of April 2021. My psychiatrist never agreed with me.

@avmcbellar
I was concerned about Diabetes, cholesterol & blood pressure so I lost 90 pounds. Weighed 227 and went down to 134 but gained a few pounds. Everyone thought I was sick or we're asking if I had cancer. However, I ate candy or some type of goodies every day. I bought me a 5 pound Hershey chocolate bar to celebrate with when I reached my 90 pound goal. I thought for sure I’d eat it but I still have it. Of course I have more than enough candy cookies pies pastries and junk spread around so no emergency. Someone just sent me a box of fudge today for my birthday and it sure is GOOD!!!
Take care,
Jake

@jakeduck1 Thanks for thinking about this. I just assumed I was a whiney, weak person - this was one of the last medications my psychiatrist had in his arsenal to try and help my refractory depression/anxiety. I will research this. @faithwalker007

No worries, Laurie. You should still be able to make shakes using foods that are low in fiber. How about the fruits and vegetables you can tolerate. Can those be used to make your shakes? Banana and apple should be OK. Veggies should be cooked not raw. Besides the plant based milks there are dairy milks available without lactose for those who are lactose intolerant. Is your GI sensitive to the plant based milks? I prefer using dairy milk without the lactose with my oatmeal to keep the carb count down. You would think the senior centers to have different diets available to please their residents. There are so many needs. How about ready made shakes? I get the diabetic shakes for my mother. I have noticed there are also mixes available for smoothies at the grocery stores. Maybe there is one for you. Some contain vitamins as well. Don’t give up. Look into the possibilities. The mixes can be used with a blender or a bullet. A suggestion would be to check the Amazon website to see what is out there.

Why would a doctor tell you to stay on lamictal with the rash? Were you taking it to control seizures or neuropathy? Sorry, I’m behind the 8 ball here. Help!

Happiest belated birthday Jake! 🎂🎁 may I ask how you lost your weight? Can you tell me what you ate and how much of it, maybe an example of a couple of days and nights. I asked because I intentionally lost 200 lb but it was really the fifth time I've lost a great chunk of weight but this is the only time I have kept it off for three years. It was brutal deprivation, very low calories. How long have you kept this weight off? You sound like me in your love of sweets! I wish you many blessings and a very safe and happy coming year. I just turned 68 on the 8th of February. It's really sounding so close to 70! Warmest m regards, Sunny flower 😊

I can relate to that. I can barely stand for two minutes. I can’t sit, lie down, or walk. My dog is the one who gives things for me. I have a cane, walker, and scooter. I have a chair I sleep in. All I want is to have one day without pain and am still dreaming about it happening.
I’ll wait for it or not but either way, I’ll survive.