Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Thank you for the great ideas! Hope today is a much better day for you. Many blessings, Sunny flower
Funny how we learned from experience using the different walkers. I can say that going back to my original walker would be a health hazard and not worth the fall risk.
Hi Barry, I was just reading about Michael Moskowitz and his neuroplasticity theory on pain maps. I haven’t researched it at all, just wondering if you’re familiar with him and his ideas and what your thoughts might be. Helen
Thanks @fiesty76 for suggesting other ways to use spinach. There are multiple recipes, even spinach pie. Something for everyone. I always try different greens and not stick to one for a variety in taste and nutrition. Lol, my bunnies like that too. I share raw veggies, greens, and herbs with them. Nothing goes to waste here.
Toni, thx for the info. What juicer or smoothie maker do you recommend? I do look online for recipes etc. all the time. I appreciate your help and patience. Warmest wishes, Sunnyflower 🤗
Michael was advocating many forms of medications to to overcome , but after much more research and admitted, to his credit be became a great believer of neuroplasticity, as I do . I you look at my previous post on two books on the on th book by Norman Doidge . Michael is one of the pioneers who accepted the brain is not static, but plastic. I recommend you buy his first 'The brain that changes itself" not only read but research thoroughly. It covers the stories of great people who reached the same conclusions as Michael .
@user_che214927
I hope you'll keep us informed as to your progress.
Fingers crossed,
Jake
Hi Jake, thanks for the info. The Gabapentin definitely helps me get through my pain aka tolerate it, but doesn't eliminate it. It really messes with my balance and having proprioception doesn't help. I have a lot of the unwanted side effects of it but everytime I try to decrease my dose, my pain intensifies.
When I read what you have been through and go through in life, it confounds my mind bc it's too much for a human to bear alone. It siunds like you walk closely to our precious Lord. That is the only thing that gets me through as you probably have read many times on my post.
Just knowing our almighty God intimately and understanding He has a purpose and plan for my life, is what gets me through. I am in the presence of Holiness at all times and experienced His peace through Christ that surpasses understanding (Philippians 4:7) and His comfort. I know that this present suffering cannot be compared to the glory we will see in His time. Romans 8:18.
In Christ's unfathomable love, Sunny 🙏♥️
Sunny, you’re welcome. I use a simple blender(Oster). To be able to make just a single portion my kids use The Bullet. A never used a juicer. Besides it being more expensive, it takes all the fiber away and leaves only the juice. The fiber is good to include from foods too. The juice not only contains nutrients but also the sugary stuff. The fiber helps to not digest all the sugar.
@avmcbellar, Thankyou for all your good advice about making smoothies. I think you've convinced me to buy a blender! I've never been sure what brand to get, so it's very helpful to know that you use an Oster, and just a blender, not a juicer. I'm having so much difficulty with diet right now due to ongoing G.I. and Diabetic issues and my diet has become very restricted. No carbs (severe neuropathy in my legs), difficulty digesting fruit or raw veggies, lactose intolerant, etc. I'm sure many of us have the same issues. May I ask what you use as a liquid with the greens or fruit, or do you need to add a liquid? Thanks for your help!
Warm wishes, Laurie