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PSMA scan report is in : (((
Ok .... First I want to say that PSMA obviously works at very low PSA, at lest worked for us at 0.14. Tracer used was F-18.
There are 4 nodes with mild uptake in pelvic area and one in the groin area (inguinal) which they think is possibly not PC and will be checked by biopsy or incision. My husband will ask for it to be removed and examined since it is on the surface, and he likes "things removed"in general. Other nodes are 3 iliac and one mesorectal.
So yeah 😔, I wish there was "nothing" but at least we know where the cancer is and it can be targeted. RO thinks that this does not change initial plan but it will be intensified , more Gys to nodes and he will talk to MO regarding ADT. Possibly now a year of ADT with addition of Nubeqa. So far my husband has zero SA from Orgovyx, but only 7 days passed since he started it, so we will see.
Warning to new patients :
1) - INSIST on node sampling during RP (we did but we were ignored) , so I do not know - maybe tell that you will raise the hell if they do not sample nodes (???). I am so angry, I can not even describe the state of me at this moment. We asked numerous times for nodes to be dissected since one was faintly glowing, my husband asked for that even right before he was wheeled in for surgery - and surgeon did not do it "since nodes looked normal" - somebody just sho*t me already !!!! 🤬
2) DO NOT WAIT for uPSA to go to over 0.2 - things will bee seen on PSMA even with mild uptake ! The earlier you start with sRT , the better.
Hugssss to alllll 🤗 and hoping that you are all having much better day.
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@ucla2025
Thanks ucla2025 so much for your support 💖.
I was thinking of you this morning when we got results and thought that this was probably how you felt when you saw your husband's lab report : ))) ! Yes, enormous relief !!! We can now relax a bit, finally 🍀😌
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2 Reactions@swl1956
Thank you @swl1956 for sharing and for detailed description of your treatment and for your advice 💗 and also for well wishing and comforting words 😌. It is all sooo very much appreciated.
I am happy to hear that you had such a great success with RT and ADT and we hope that we will have the same results.
I am wishing you total eradication of cancer and forever remission 🍀 : )))
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1 Reaction@surftohealth88 - Those are great numbers. Congrats you guys!
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3 Reactions@surftohealth88 Well, you see…there’s an opening for the baby’s exit…and another opening NOT for that💩!
So when the OB takes those poultry shears and connects these two openings THROUGH the perineum you have one BIG opening for ‘baby’ to make his/her entrance…leaving poor Mommy in shreds and having to have her violated parts sewn back together with UPS wrapping twine and a suturing needle big enough to mend a torn sail on a racing yacht…
I think that about covers it, right?
And please notice the ‘nautical’ tie in between the sailboat and the albatross circling overhead. I thought that was a nice touch😘
Phil
Phil
@surftohealth88
Those are great numbers, three cheers!!!
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3 Reactions@mjp0512
Thanks mpj 💗, finally something to hold onto for hope *knock the wood : ))) .
@klein505
Thanks Mrs K 🥰 !!!
CHEERSSSSSS 🍹
@heavyphil
Oh no, no "connection" should be ever made, god forbid - that would be bordering malpractice *shudder 😖 Cut is very short and done in a sideways angle precisely for that reason ... to prevent that happening. Only rarely it is done mid-line and NEVER even close reaching anal opening. There are just few stitches placed after that and they are made of dissolvable material , they just dissolve after several days - I have no idea where you got that information 😵💫. Were you present at your daughter's birth ?
@surftohealth88 NO KIDS!!👏
There is an actual Fistula Foundation devoted to helping mostly African women who have either been mutilated by well meaning OB’s - or thru natural circumstances.
These poor women suffer with chronic bladder infection from fecal contamination and believe it or not, are shunned or driven from their villages due to their abnormality.
It shouldn’t happen (and usually doesn’t in modern societies) but sadly it’s still prevalent in much of the undeveloped world. https://fistulafoundation.org/
Phil
@surftohealth88
Wow!! Really great to see such an amazing result for both of you.
Yes, enjoy this and relax a bit--you both have earned it.
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