Living with Neuropathy - Welcome to the group

I'm so sorry to hear you felt nauseous. Since I have always had some pain, I guess I'm just use to it. I am worried as I get older things are going to get worse. That is why now I'm searching for anything to help. As my husband says, doctors just "practice" medicine and I am now sure he is right. You go to all these doctors, one tells you one thing and another tells you something else. When I take all my paperwork from tests, xrays, etc to a new doctor, they just look at me and explain the importance of starting over. NOT!! I'm smart enough to understand now in our medical field that it's all a money issue, especially if you are on Medicare. Sorry to be such a downer, but I'm just so tired of this. So, I will continue my search. Good luck.

yes, the physical therapy was outpatient, but associated with the hospital where the surgery was done. I will continue my search!!

Dear greeneyes55, I understand the pins and needles and the cold feet so well! Do your feet also feel wet? I have the same as you only they feel wet sometimes and so cold they feel hot. Just like getting liquid nitrogen at the doctor. I have to use heat on them b/c the cold makes them ache. I think some is my Raynaud's and some neuropathy. I'm so sorry you're going through this. It's a lot!!! Did the surgery help anything? I've had 3 back surgeries; the third a fusion. All three helped everything! I had the neuropathy pain in my feet before the surgery. I will keep you in my thoughts and prayers. Warmest wishes, Sunnyflower @faithwalker007 @bustrbrwn22

Jen, Oh my gracious! I think I lost mine just reading about how it feels for you. I am so sorry! That sounds brutal and a lot to endure!! Is it intermittent or there all the time? It amazes me how many of us have identical symptoms yet some even have more unusual ones too. Sometimes the souls of my feet are so numb it feels like I'm walking on a sponge! Take good care, Sunnyflower

I'm new here. Before I tell about my legs' life story let's just see if this posts successfully.

Good evening @californialen , welcome to Connect. Yes, your post has arrived.

You can tell your leg’s life story now. How did you find us? We are a positive and helpful group of folks who have been there. Our legs tell stories too.

We are not medically trained, and so cannot diagnose or prescribe. What we can do is share your story with folks who are experiencing similar medical issues.

See you in the morning.
Be safe and protected.
Chris

This is my first try at the discussion board.
I am an 88 year-old man in good physical and mental health except for my spine and legs. I exercise for 40 - 80 minutes each day, doing core stabilization and stretching exercises, riding a stationary exercise bike and walking when I am able. I'm active in my community.
I have severe lumbar spinal stenosis at several levels plus neuropathy in my feet and legs. My neurologist says there's nothing that can be done. Every spine doctor I see looks at my MRI and says there's nothing that can be done except surgery which is not a good idea at my age and of uncertain outcome. Physical therapists run me through a few tests and exercises and then say, "See me again if it get worse."
Well, I'm not happy because my feet and legs lose strength unpredictably. Aside from the fall risk, this keeps me from planning my life from day trips to overseas journeys. It's not a pain problem like many here have. Its just that I can't rely on my legs. I was at a resort shortly before the COVID shutdown and got out of bed and needed a wheelchair to get to breakfast . . . all of a sudden. A few hours later I was walking normally.
I take 1200mg of Gabapentin and have no pain. I also take 30mg of Cymbalta that seems to cut down on the pins and needles and freezing of my feet. BTW, I would welcome comment from anyone who has tried Wellbutrin because the Cymbalta has some side effects that I don't like.
Anyway, I am impressed by all of the things that members of this group have tried, in many cases because their doctors have not come up with solutions. I have tried acupuncture, bought a foot vibrator, bought a small TENS machine, currently am trying to do without statins, have my weight under control (pre-Thanksgiving) but am more at peace with the COVID lockdown than I am with my body's physical limitations. Any thoughts?

Hi from Australia. I turn 9o years in a couple of weeks and have a story similar to yours. I am on nil medication of any description. Up to a couple of years I was a HIITman in the gym . I have been diagnosed with Peripheral-neuropathy . I have many notes on file at this site. Read them and I'm sure that, you are like me , a man of action. I am now 3 months into the practice of Neuroplasticity. and am achieving results, small but definate. I expect to recover fully, within 18 months to 2 years.Best wishes, we can beat it!

californialen, vitamin K2 may offer relief. Note at the end of the westonprice link it is stated K2MK4 is best derived from food not supplements. True because they are synthetic. Also, thiamine is worth researching. Sad fact it and vitamin D requires sufficient magnesium to make it bioactive. Look into boron...search on "nothing boring about boron"
https://www.westonaprice.org/health-topics/in-defense-of-vitamin-k2-mk-4-dr-prices-activator-x/
https://obgyn.mcw.edu/wp-content/uploads/Vitamin-K2-Froedert-Womens.pdf
https://originalhealthinstitute.com/natural-pain-management/spinal-stenosis-treatment-in-phoenix-az/
https://www.krispin.com/magnes.html

Amen! 😢