Considering options, finding community: Meet @jowilliams1

3 days ago | Teresa, Volunteer Mentor | @hopeful33250 | Comments (16)

Farm field with bales of hay, meet member @jowilliams1

TERESA: What brought you to Mayo Clinic Connect?

@jowilliams1: In June, 2024 at the age of 54, I was diagnosed with high-grade muscle-invasive bladder cancer. I was told that same day my bladder would have to be removed. I had a lot of choices to make on my urinary diversion options and wanted to make an educated decision. I went into a deep dive trying to learn all that I could about bladder cancer. I started reading information connected to Mayo Clinic and in the process found Mayo Clinic Connect. 

TERESA: What motivates you to take part in Mayo Clinic Connect?

@jowilliams1: Mayo Clinic Connect is where I’m able to learn about the experiences of others while also being able to share my own story. It interests me to read about the differences in treatment plans among community members. I’m doing well and I would like to think that I can offer some optimism and hope to someone that may be struggling or anxious.

TERESA: What about Mayo Clinic Connect makes you feel comfortable to share and to be open with the community?

@jowilliams1: I think it is normal for those of us who have gone through cancer to feel a connection with one another. Everyone’s story is different, but most of us are doing the best we can to stay hopeful. Community members know what it is like to have a day when you feel physically or emotionally defeated. It’s a safe place to be allowed to hold space for those emotions.

TERESA: What support groups do you participate in?

@jowilliams1: I’m in the Bladder Cancer Support Group

TERESA: Tell us about a meaningful moment you've experienced on Mayo Clinic Connect. 

@jowilliams1: It may sound silly, but even the little “helpful” buttons that I sometimes receive in response to a message I’ve posted make me feel good . If my words are helpful in even the smallest way to someone else, I’m glad. 

TERESA: What surprised you the most about Mayo Clinic Connect?

@jowilliams1: I was surprised at the encouragement that so many community members share amongst each other. There is a true sense of caring. 

TERESA: What energizes you, or how do you find balance in your life?

@jowilliams1: I work full time and my employer has been very supportive of my cancer journey and the balance between work, health, friends and family that the last couple of years has required. I feel very blessed in so many ways and that energizes me.

TERESA: Tell us about your favorite pastime or activity.

@jowilliams1: I love spending time with my family and friends, especially my two sons (ages 24 and 26). I also enjoy traveling, baking new recipes to share and reading non-fiction. 

TERESA: What do you love about where you live or vacation?  

 @jowilliams1: I love an open field.  I grew up on a farm, so any untouched land reminds me of my faith and brings me a sense of calm.

TERESA: Do you have a favorite quote, life motto or personal mantra?

@jowilliams1: A healthy man wants a thousand things; a sick man only wants one. Confucious

TERESA: What do you appreciate the most in your friends?

@jowilliams1: My friends have my back. I know that if I need something and reach out, they will be there. That means the world to me.

TERESA: If Hollywood made a movie about your life, who would you like to see cast as you?

@jowilliams1: Julia Roberts (of course! LOL)

 

Member Spotlights feature interviews with fellow Mayo Clinic Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight.

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Profile picture for mamajite @mamajite

@jowilliams1 thank you for sharing your story! your favorite quote hits home (I'm sure with most of us here on Connect.) this is a safe space for me, as well, and I'm very appreciate of the supportive community.

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@mamajite Thank you. It helps to know we are not alone. My best to you!

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Profile picture for jowilliams1 @jowilliams1

@diverdown1 Thank you so much. We all have more strength than we realize (someone very special that battled his own cancer once said that to me when I needed it).

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@jowilliams1 Very true - when the going gets tough, the tough get going ❤️‍🩹

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@jowilliams1 Thank you for sharing. I’m so glad you’re doing well. I had to google your type of cancer, and was surprised how common bladder cancer is. Wishing you all the very best and on going good health.

Loved your photo. My grandparents were farmers and we spent many happy Christmas holidays with them. Some of my happiest memories. I totally get your feelings

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Profile picture for Cheryl, Volunteer Mentor @cehunt57

Thank you @jowilliams1 and @hopeful33250 for the great Spotlight!

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@cehunt57
DJD83 here in response to @jowilliams: Your story resonates with me. In October 2019 at age 77 and newly widowed after a 40 year marriage-I was diagnosed with the same muscular invasive bladder cancer, and given no hometown option but immediate radical extraction. I immediately rejected the local surgeons, contacted Mayo Clinic, days later was warmly welcomed by Mayo Rochester Urology specialists. After two days of diligent examination, the staff confirmed my hopes: that I would qualify for the bladder preservation surgery protocol. There is more to the story to be shared at another time. But, the bottom line is that today - after following Mayo's protocol and a few years of treatments, I have been cancer free with a complete and fully functioning bladder. As I tell my friends "all the internal organs and equipment with which I was born and baptized." Now I spend most of my time with the purpose and passion to bring healing and hope to those who need it. That is one reason why I readily signed up with Mayo Connect! Blessings and Peace to those in need, DJD83 6/6/26

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Profile picture for isadora2021 @isadora2021

@jowilliams1 Very true - when the going gets tough, the tough get going ❤️‍🩹

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@jowilliams1 Yes.
When the going gets tough - the Tough Get Going!!

We are resilient and very strong 💪 people

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Profile picture for djd83 @djd83

@cehunt57
DJD83 here in response to @jowilliams: Your story resonates with me. In October 2019 at age 77 and newly widowed after a 40 year marriage-I was diagnosed with the same muscular invasive bladder cancer, and given no hometown option but immediate radical extraction. I immediately rejected the local surgeons, contacted Mayo Clinic, days later was warmly welcomed by Mayo Rochester Urology specialists. After two days of diligent examination, the staff confirmed my hopes: that I would qualify for the bladder preservation surgery protocol. There is more to the story to be shared at another time. But, the bottom line is that today - after following Mayo's protocol and a few years of treatments, I have been cancer free with a complete and fully functioning bladder. As I tell my friends "all the internal organs and equipment with which I was born and baptized." Now I spend most of my time with the purpose and passion to bring healing and hope to those who need it. That is one reason why I readily signed up with Mayo Connect! Blessings and Peace to those in need, DJD83 6/6/26

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@djd83 I greatly admire people who self Advocate for themselves! I do!! Fantastic results! You are amazing ……..and managing to do this newly widowed after a 40 year marriage too…………. that brings tears to my eyes 🩷

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