Living with Neuropathy - Welcome to the group

Hi Sunny, I sent you a private message about this. Hank

Hi everyone, it's been a while. Has anybody had recent experience with sacral neuromodulation ( InterStim device)?

@elizabej, There is a discussion started by @januaryjane on Sacral Nerve Stimulation but it doesn't have many posts. She may be able to offer more information or experience - https://connect.mayoclinic.org/discussion/sacral-nerve-stimulation/

Here's some information that may provide some answers for you:
- Sacral nerve stimulator: https://www.mayoclinic.org/sacral-nerve-stimulation/img-20008680
- Patient Story - Back in Control After Successful Incontinence Treatment: https://sharing.mayoclinic.org/2020/01/06/back-in-control-after-successful-incontinence-treatment/

@jesfactsmon Hi Hank and Linda. It has been a month since my last headache. This time I was better prepared with the Shifa tea. I followed your instructions except I froze the concentrated tea in ice cube trays. I put one or two cubes in a small amount of water to sip. The headache decreased in intensity. The tea helped but unfortunately it didn’t make the headache disappear. I believe the headache is caused by the eyesight. Doing the eye exercises is causing changes with my eyesight and balance. I can feel it in my ears as well. I will try sipping the tea throughout the month to see if it makes a difference. I want to thank you both for the recommendation. It was definitely worth trying. I hope the motion sickness eventually gets better. Thanks again. Wish you both well. Toni🤓

@avmcbellar
Hi Toni, nice to see a post from you!
Yes, Linda would agree with you that the tea does not eliminate her headaches. But it pretty consistently lessens the headache pain by about 1/3. It's enough to keep it from being horrible, which hers can sometimes be. I can definitely understand why your headaches can originate from your eyes. I hope your exercises eventually help you to eliminate your double vision. I admire you for working so assiduously to do these exercises. I have been reading the book about neuroplasticity. Tremendously interesting subject! Best, Hank

please introduce

@chrs6
Hi, I see that you posted back on 9/13 that you suffer from neuropathy. Can you describe where you feel it the most? How long have you had it? I would like to know more about you and your situation chrs6. Please fill us in. Best, Hank

Hi I think that behind my toes in my feet, there is no feeling? I was told by my PCP that as one adds years to ones life this happens to some folks, my feet are a long ways from my heart, so as individuals age sensations in the feet and toes can be affected, has any one else had this happen????

@elderellen
Hi there. So you are experiencing numbness in your feet and toes? There is an excellent discussion ongoing in the neuropathy group regarding numbness and peripheral neuropathy (PN). Here is the link, you might find some of the posts very interesting:
https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/
John Bishop @johnbishop started that discussion. He is suffering from numbness in both feet. You can read his story there and what he has been doing to help his situation. You will also find others who have chimed in about their numbness as well. Give it a look. And by the way, welcome. This forum is a great place to gain first hand info from others and get support from other sufferers like yourself. Hope you gain the insights you are seeking.

Best to you, Hank

@elderellen
Hello Ellen,
My Neuropathy started because of seizure medications. It initially was in the bottoms of my feet and has progressed past my waist. The good news in my case is after 30 or more years the horrendous pain, stinging, burning, tingling & all the various different sensations that once impeded my walking and prevented life from being enjoyable are gone. Those sensations have been replaced with numbness. The numbness causes it’s own problems however is in my opinion much better than the various pains I once endured.
I believe @johnbishop also now has numbness. Do you know what type of neuropathy you have? There are over100 different types, some of them treatable sometimes successfully if the neuropathy was caused by a vitamin deficiency, alcohol, sometimes if blood sugar levels are controlled in Diabetic Neuropathy or perhaps a medication induced Neuropathy. Unfortunately when my medication changed it didn’t help me. Unfortunately these treatments aren’t always successful. Some people find relief with Neurontin/Gabapentin others do not. My brother takes the maximum dose of 3,600 mg a day and finds some relief. I also took 3,600 mg a day and found no relieve for my Neuropathy or for my seizures. Neurontin/Gabapentin is an
Anti-convulsant medication. Others use creams, vitamins, minerals, etc.
I hope you find relief for your symptoms wishing 🙏 you the best of luck,
Jake