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Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
Jim, Volunteer Mentor | @jimhd | Sep 26, 2020
In reply to @sunnyflower "Oh my gracious Jim I just cringed when I read about your thumb injection! Absolutely you..." + (show)
@sunnyflower

Oh my gracious Jim I just cringed when I read about your thumb injection! Absolutely you should be able to get some sedation for that. I did not even know that was an option until the nurse asked me if I wanted it this last time! This was my fourth lumbar injection but the first three were in the late 1990s. I do not know how much it will cost you though or what you will have to pay. You really have to be your own advocate in the field of Health Care. So sad but so true. I'm going to pray it all works out for you and is very affordable and that you can have it. If it is not available, then I'm sure you could get some valium or another benzodiazepine. I do know that Valium has muscle relaxant properties in it but I do not know if the others do. I will pray it all works out for you Jim oh, Lord knows you deserve it if anyone does! Multi many blessings, Sunny

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@sunnyflower Thank you, Sunny. When the time comes for another injection, I'll bring it up with the doctor.

Jim

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bustrbrwn22 | @bustrbrwn22 | Sep 26, 2020
In reply to @jimhd "@sunnyflower It sounds from what you wrote in this message that you had sedation for steroid..." + (show)
@jimhd

@sunnyflower It sounds from what you wrote in this message that you had sedation for steroid injections. Is that correct? I'm wondering if I could get it for a very, very painful guided injection in my thumb for arthritis.

Thanks, sunny. You're a blessing and a great encourager (maybe one of your spiritual gifts?).

Jim

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@jimhd A shot in the thumb has got to be painful. Shouldn’t Valium at a minimum be given as well as light sedation. This sounds like unnecessary pain you went through. I am sorry.

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Mentor
Jim, Volunteer Mentor | @jimhd | Sep 26, 2020
In reply to @bustrbrwn22 "@jimhd A shot in the thumb has got to be painful. Shouldn’t Valium at a minimum..." + (show)
@bustrbrwn22

@jimhd A shot in the thumb has got to be painful. Shouldn’t Valium at a minimum be given as well as light sedation. This sounds like unnecessary pain you went through. I am sorry.

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@bustrbrwn22 My orthopedist - who is not the one who did the injection - said that the hand, especially the thumb, is the most painful place, and the ankle isn't far behind. I'm definitely going to have a discussion about it.

Jim

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1 reply
sunnyflower | @sunnyflower | Sep 26, 2020
In reply to @jimhd "@bustrbrwn22 My orthopedist - who is not the one who did the injection - said that..." + (show)
@jimhd

@bustrbrwn22 My orthopedist - who is not the one who did the injection - said that the hand, especially the thumb, is the most painful place, and the ankle isn't far behind. I'm definitely going to have a discussion about it.

Jim

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Definitely Jim! @jimhd @bustrbrwn22 I don't think they can refuse you if you tell them you are terrified and that you won't be able to tolerate the pain. Just make sure you know what your costs will be. If your doctor won't agree, find one who will. Keep us posted! I will pray that it works out for you and that you will be able to have peace and sleep well. Take care, Sunnyflower

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 2, 2020

Hi all, Today's member spotlight features @rwinney, a member well known to members of the Neuropathy group. Read her interview with fellow member @hopeful33250 to learn more about Rachel: meaningful moments she's had on Mayo Clinic Connect, what motivates and inspires her, and which Hollywood actor would play her in a movie about her life.

– Where there's a Winney, there's a way: Meet @rwinney https://connect.mayoclinic.org/page/about-connect/newsfeed-post/where-theres-a-winney-theres-a-way-meet-rwinney/

+Follow the About Connect page to see all the Member Spotlights and be notified when new spotlights are published: https://connect.mayoclinic.org/page/about-connect/tab/newsfeed/

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1 reply
sunnyflower | @sunnyflower | Oct 2, 2020
In reply to @colleenyoung "Hi all, Today's member spotlight features @rwinney, a member well known to members of the Neuropathy..." + (show)
@colleenyoung

Hi all, Today's member spotlight features @rwinney, a member well known to members of the Neuropathy group. Read her interview with fellow member @hopeful33250 to learn more about Rachel: meaningful moments she's had on Mayo Clinic Connect, what motivates and inspires her, and which Hollywood actor would play her in a movie about her life.

– Where there's a Winney, there's a way: Meet @rwinney https://connect.mayoclinic.org/page/about-connect/newsfeed-post/where-theres-a-winney-theres-a-way-meet-rwinney/

+Follow the About Connect page to see all the Member Spotlights and be notified when new spotlights are published: https://connect.mayoclinic.org/page/about-connect/tab/newsfeed/

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@rwinney @hopeful33250 Hello! I LOVED reading about you Rachel!! Thank you for sharing with all of us! My experience w/ Mayo blog is similar to you in the trust/security aspect and just about everything else! So good to know you all here! I feel blessed to have found you all!!! Many blessingsm Sunnyflower aka Sunny

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Mentor
Rachel, Volunteer Mentor | @rwinney | Oct 2, 2020
In reply to @sunnyflower "@rwinney @hopeful33250 Hello! I LOVED reading about you Rachel!! Thank you for sharing with all of..." + (show)
@sunnyflower

@rwinney @hopeful33250 Hello! I LOVED reading about you Rachel!! Thank you for sharing with all of us! My experience w/ Mayo blog is similar to you in the trust/security aspect and just about everything else! So good to know you all here! I feel blessed to have found you all!!! Many blessingsm Sunnyflower aka Sunny

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@sunnyflower Thank you my dear! So blessed to have you here with us too 🌞🌷.
Rachel

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1 reply
sunnyflower | @sunnyflower | Oct 2, 2020
In reply to @rwinney "@sunnyflower Thank you my dear! So blessed to have you here with us too 🌞🌷. Rachel" + (show)
@rwinney

@sunnyflower Thank you my dear! So blessed to have you here with us too 🌞🌷.
Rachel

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Thx Rachel. How do you get the cute flower and sun on here? I don't have or see an option on my MS Surface tablet. Thanks! Sunnyflower

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Hank | @jesfactsmon | Oct 3, 2020
In reply to @sunnyflower "Thx Rachel. How do you get the cute flower and sun on here? I don't have..." + (show)
@sunnyflower

Thx Rachel. How do you get the cute flower and sun on here? I don't have or see an option on my MS Surface tablet. Thanks! Sunnyflower

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@sunnyflower
Hi Sunny, not sure what the best way is for doing emojis on a tablet, but here is a link to a website with the largest collection of of emojis I have personally ever seen:
https://unicode.org/emoji/charts/full-emoji-list.html
If it works for you, you could go to this site, find an emoji you want, do a "copy" of that one, and then go to wherever you want to put it and do "paste". On this website if you search the word "flower" it will take you to a large collection of different ones. There are quite a few to choose from (they have several sunflowers, btw 🌻) Same with suns, just search for the word "sun" 🌞.

If you search the web for the word "emojis" there are many other collections available as well, in case this one is not to your liking.

Hope this is helpful. 💐
Hank

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sunnyflower | @sunnyflower | Oct 5, 2020

Thx Hank, have tried copy and pasting from this site and it won't work. I don't get it. Makes no sense. Mmmmmmm This one is when I hold my finger in the field, emoji options appear but they aren't too good. They look super tiny and almost unreadable when I past them here. I don't know how big they come out when you see them. I'll try putting my name here in this message so I can see what you receive. 😏 Take care and have a good day, Sunny @sunnyflower

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