Having shortness of breath for almost a year now

Posted by globaloutlet @globaloutlet, May 27 7:18pm

I have been having shortness of breath since last August 2025. Went to see pulmonologist, cardiologist, allergy specialist and GI doctor. Did so many tests from lungs to gut issue tests. Went to ER 4 times, and hospitalized 3 days for heart condition, but they still couldn't find the root cause of my shortness of breath. Did angiogram and doctor said no blockage. Thinking of going to Mayo Clinic for answer but I don't know where to start and what doctor to go to. Help ! I am so tired for not be able to breath 🙁

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Please let us know if you learn more at the Mayo Clinic or other places. While finding nothing is frustrating, it's also comforting there is apparently nothing dire. What is the heart condition? Seems like maybe the heart could be the culprit.

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Profile picture for stew80 @stew80

Please let us know if you learn more at the Mayo Clinic or other places. While finding nothing is frustrating, it's also comforting there is apparently nothing dire. What is the heart condition? Seems like maybe the heart could be the culprit.

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@stew80 I have been going through the same thing for the past 11/2 years. I went to my primary, he sent me to my cardiologist, cardiologist sent me to Abbott for a Angiogram and ct scan.
Xray lead down the path of stage 4 lung cancer. Started treatment in October with Chemo and Immunotherapy. After 6 months still complained of continuing shortness of breath. Oncologist insisted this was not from the lung cancer or the drugs. I went back to my pulmonologist, she tested me more specifically for other causes of my shortness of breath. Turns out it is COPD and Emphysema. Something I don't want to have but I am no longer looking for the cause.
I was given two types of inhalers, they help but certainly no cure.
I hope you find your cause.

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I'm sorry to hear about your COPD/Emphysema diagnosis. My SOB cause is still undefined. I just live with it but sometimes it is scary.

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I got sob last year while walking a 2 mile fast walk. All of a sudden my lungs felt heavy. I went to the er and no heart attack. I’ve had all heart tests done and no blockages and my valves are good. I went to a pulmonologist and had a pft and ct scan and all is great. She told me that it’s from being 71 and having childhood asthma and my past smoking history is the reason why my lungs feel heavy and sob. I quit smoking 42 yrs ago. So I just have to live with it. I did have a EGD for gerd and all was good. I’ll keep doing what I do until I drop over dead!

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Oh boy can I relate to this. Five years ago I was diagnosed with stage 4 metastasized melanoma in my lung. I went on immunotherapy Keytruda. I went into remission rather quickly but this severe shortness of breath is so severe I cannot function. My quality of life is next to nothing.
I cant walk 20 feet without feeling like it's my last breath. As soon as I sit I am as good as new. I cant do a simple task such as take a shower, make a bed, get dressed, load the dishwasher.
I have been to a heart doctor (keytruda damaged my heart) my lung doctor and oncologist. All their test come out normal.
I am at a loss.

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I feel your frustration for this problem that they can’t figure out. I’m not slowed down by this heaviness in my lungs. I just keep pushing myself forward. I guess it will be like this until I die. I’m done getting any more tests.

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Profile picture for stevebjerke @stevebjerke

@stew80 I have been going through the same thing for the past 11/2 years. I went to my primary, he sent me to my cardiologist, cardiologist sent me to Abbott for a Angiogram and ct scan.
Xray lead down the path of stage 4 lung cancer. Started treatment in October with Chemo and Immunotherapy. After 6 months still complained of continuing shortness of breath. Oncologist insisted this was not from the lung cancer or the drugs. I went back to my pulmonologist, she tested me more specifically for other causes of my shortness of breath. Turns out it is COPD and Emphysema. Something I don't want to have but I am no longer looking for the cause.
I was given two types of inhalers, they help but certainly no cure.
I hope you find your cause.

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@stevebjerke did your pulmonologist order you the breathing test and CT scan for your lung ?

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Profile picture for songinmyheart54 @songinmyheart54

Oh boy can I relate to this. Five years ago I was diagnosed with stage 4 metastasized melanoma in my lung. I went on immunotherapy Keytruda. I went into remission rather quickly but this severe shortness of breath is so severe I cannot function. My quality of life is next to nothing.
I cant walk 20 feet without feeling like it's my last breath. As soon as I sit I am as good as new. I cant do a simple task such as take a shower, make a bed, get dressed, load the dishwasher.
I have been to a heart doctor (keytruda damaged my heart) my lung doctor and oncologist. All their test come out normal.
I am at a loss.

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@songinmyheart54 me too, I can't do simple task as well 🙁 Very frustrating !

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Does anyone one have sleep apnea with this SOB. Like waking up breathless in a panic? Happens to me occasionally.

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Profile picture for globaloutlet @globaloutlet

@stevebjerke did your pulmonologist order you the breathing test and CT scan for your lung ?

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@globaloutlet Breathing test yes, CT scan no.

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