Glioblastoma (GBM) treatment with Avastin, hope on road to recovery

Posted by allanb17 @allanb17, Apr 26 7:17am

My wife is into her 3rd year with a GBM wildtype she just started her 4 treatments of avastin after her 2nd treatment she had a mri the mri looked great the swelling and the mass was gone she still has 2 more treatments to go we are hoping that her left arm and leg will start to come back per the Dr. she might be able to get out of her wheelchair

Allan

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after a long battle of 27 months my wife Joanne passed away on may 21 2026 from the GBM
Allan

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@allanb17 , Am sorry for your loss and wish you nothing but the best. Have a blessed day.

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Profile picture for ronalddevans @ronalddevans

My 53 year old daughter was recently diagnosed with Glionastoma 4 and had surgery 3 weeks ago. The was recently transferred to a medical rehabilitation center. The family is searching for a private care center. Can anyone explain the medical difference between long term and short term care is? Thank you, A dry worried father,Ron.

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@ronalddevans, the short answer is that short-term care in a facility is temporary. Long-term care is enduring to life's end.

Short-term care focuses on rehabilitation and recovery after surgery, illness, or injury, aiming to safely return the patient home. Long-term care provides ongoing, indefinite assistance with daily living for individuals with chronic illnesses, advanced age, or permanent disabilities who can no longer live independently.

Has short-term care been recommended for your daughter? How is she doing? How are YOU doing?

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My husband was never the same following is grade 4 glioblastoma tumor. They released him from hospital the day following surgery. He couldn't even remember how to use the TV remote. He was at home basically just sleeping, very little talking before having a stroke and back in hospital for one week where it appeared they were only trying to use him for research. My children and myself made the decision to move him to hospice care after there was no evidence of progress. While hospice were kind, it appeared their jobs were to merely keep him comfortable through sedation until the end which in his case lasted 3 horrible days. I have seen people die but it was the worst thing I have ever experienced in my life. I was told by hospital staff that hospice is allowed to give medications they are not allowed and in doses they are not allowed. While he wasn't restrained like in the hospital and crying out, he never again opened his eyes or spoke once in hospice. It was a very difficult decision but depends on whether there is still hope which in our case there was not.

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