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Tymlos side effects I've encountered

Posted by anniesan @anniesan, Oct 2, 2022

Hi. I started Tymlos in February 2022 and about a month after starting it I began experiencing excruciating muscle spasms, esp in upper thighs and feet, neuropathy, as well as debilitating hip, leg, and back pain. My doctor wanted me to try and stay on it for at least a year, but I absolutely could not go on living with the pain I experienced. I stopped taking the Tymlos completely 6 days ago and all my symptoms have subsided. Has anyone else experienced these side effects while on Tymlos?

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loriesco | @loriesco | 1 day ago
In reply to @feebee1955 "@jbcat26 No, and I didn’t even know that a slow build was an option. I started..." + (show)
Profile picture for feebee1955 @feebee1955

@jbcat26 No, and I didn’t even know that a slow build was an option. I started on the full 80 mcg. But now I don’t want to back down to less because there’s no way I’m going to do longer than 24 months on this!!

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@feebee1955 yes, you can do a lower dose and not go all the way up if it is bothersome. Please don't give up and reach out to a qualified doctor for support. I am a pain in the butt to my doctors. Squeaky wheel gets the oil!!!!

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ipg | @ipg | 23 hours ago
In reply to @cathyhirsch05014 "I agree, start at a lower dose. I do the dose before bed so I don’t..." + (show)
Profile picture for cathyhirsch05014 @cathyhirsch05014

I agree, start at a lower dose. I do the dose before bed so I don’t have to deal with dizziness, jaw pain is still a big problem, only at 3 clicks. Going slow.

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@cathyhirsch05014
Did the jaw pain resolve??

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