1. < Neuropathy
Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Feb 21, 2020
In reply to @steeldove "@johnbishop An interesting, but lengthly article from a medical journal https://onlinelibrary.wiley.com/doi/10.1111/jns.12298" + (show)
@steeldove

@johnbishop An interesting, but lengthly article from a medical journal https://onlinelibrary.wiley.com/doi/10.1111/jns.12298

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@steeldove Thank you for sharing the Small‐fiber neuropathy: Expanding the clinical pain universe article -- https://onlinelibrary.wiley.com/doi/10.1111/jns.12298. It was indeed very interesting. The one fact that stood out for me was the over half of SFN patients diagnosis the cause can't be identified.

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1 reply
johnhans | @johnhans | Feb 21, 2020
In reply to @steeldove "@johnbishop An interesting, but lengthly article from a medical journal https://onlinelibrary.wiley.com/doi/10.1111/jns.12298" + (show)
@steeldove

@johnbishop An interesting, but lengthly article from a medical journal https://onlinelibrary.wiley.com/doi/10.1111/jns.12298

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@steeldove is there some way to translate this into understandable language? This is way too deep for me.

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2 replies
helennicola | @helennicola | Feb 21, 2020

research=info=better drugs??? hopefully in our lifetime.

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gramm | @gramm | Feb 21, 2020
In reply to @johnbishop "@gramm I also have severe carpal tunnel in my hands and sometimes at night when I'm..." + (show)
@johnbishop

@gramm I also have severe carpal tunnel in my hands and sometimes at night when I'm sleeping on my side I will get the tingling and numbness in my hands, wrists and arms which wakes me up. I am usually able to shake it off after a few minutes though. Have you tried any hand exercises to help?

Therapeutic Exercise Program for Carpal Tunnel Syndrome
-- https://orthoinfo.aaos.org/en/recovery/carpal-tunnel-syndrome-therapeutic-exercise-program/

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Thank you for the hand exercises. I will definitely try these. Anything that helps is good, especially if it’s not more medication.

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gramm | @gramm | Feb 21, 2020
In reply to @johnbishop "Hello @gramm, Welcome to Connect. I know the tingling and burning in your hands and wrists..." + (show)
@johnbishop

Hello @gramm, Welcome to Connect. I know the tingling and burning in your hands and wrists can be awful especially when it wakes you up and keeps you awake. Have you been diagnosed with neuropathy by a neurologist or doctor? Does the burning and tingling symptoms occur during the daytime also?

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My doctor diagnosed it. I’m on naproxen for it but am unable to take the full dosage as it makes me too sleepy during the day.

The burning occurs at night when I’m in bed. Otherwise I just have numbness in my hands. My hands are also quite clumsy now too.

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1 reply
wilcy | @wilcy | Feb 21, 2020
In reply to @wgatap21 "Thx...avoiding the shot! Hoping for a better solution! Good luck and feel better" + (show)
@wgatap21

Thx...avoiding the shot! Hoping for a better solution! Good luck and feel better

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I tried the shots 2 different times! Didn’t work

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1 reply
fredjan2016 | @fredjan2016 | Feb 21, 2020
In reply to @gramm "My doctor diagnosed it. I’m on naproxen for it but am unable to take the full..." + (show)
@gramm

My doctor diagnosed it. I’m on naproxen for it but am unable to take the full dosage as it makes me too sleepy during the day.

The burning occurs at night when I’m in bed. Otherwise I just have numbness in my hands. My hands are also quite clumsy now too.

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I have peripheral neuropathy in my feet and hands. I have to keep my feet and hands out from under the covers or I wake up in pain. Once I remove them from under the covers and they cool off I can go back to sleep.

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1 reply
fonda | @fonda | Feb 21, 2020
In reply to @johnhans "@steeldove is there some way to translate this into understandable language? This is way too deep..." + (show)
@johnhans

@steeldove is there some way to translate this into understandable language? This is way too deep for me.

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My thoughts exactly

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steeldove | @steeldove | Feb 21, 2020
In reply to @johnbishop "@steeldove Thank you for sharing the Small‐fiber neuropathy: Expanding the clinical pain universe article -- https://onlinelibrary.wiley.com/doi/10.1111/jns.12298...." + (show)
@johnbishop

@steeldove Thank you for sharing the Small‐fiber neuropathy: Expanding the clinical pain universe article -- https://onlinelibrary.wiley.com/doi/10.1111/jns.12298. It was indeed very interesting. The one fact that stood out for me was the over half of SFN patients diagnosis the cause can't be identified.

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@johnbishop @fonda The article is from Journal of the Peripheral :Nervous System

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steeldove | @steeldove | Feb 21, 2020
In reply to @johnhans "@steeldove is there some way to translate this into understandable language? This is way too deep..." + (show)
@johnhans

@steeldove is there some way to translate this into understandable language? This is way too deep for me.

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@johnhans Perhaps your neurologist can explain to you how information in the article applies to your case.

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