Have nonepileptic seizures/psychogenic nonepileptic seizures (PNES)?

@bearbayou
Non epileptic episodes don't show on electroencephalogram.
Just because the EEG has no irregular electrical activity doesn't mean it's PNES or you don't have epilepsy.
Are you taking any seizure medications?
Jake

@wendy2132 --- I'm thankful the neurologist and your husband are both
exes.
Please take care.

@jakedduck1 ---- hello Jake, thanks for your interest. It will be a video EEG..which, reportedly, is a way to diagnose PNES. --The last PNES son had--was very long & powerful. There were 2 witnesses to what happened.. a potential new apt. manager for where he wants to live---walking distance from us--- and me. ----.
Yes, he takes 2 medications-- one for his tonic-clonic seizures and another tablet for his partial/focal seizures.

For 3+ years, I have been dealing with the following daily, numerous debilitating symptoms, which were then diagnosed in 2/2025 (via an EMU) as Non-Epileptic Spells (NES) - Functional Neurological Disorder (FND):
1. Shortness-of-Breath, followed by
2. Total body weakness, followed by
3. Tightness in throat & face - difficult to speak, followed by
4. Chills
5. Pain in back between shoulder blades
6. Headaches
My spells occur out of nowhere all day and evening long, even during sleeping hours.
Does anyone know of a treatment program for NES?
Or has anyone had these symptoms and it was diagnosed as something else?
I also have Parkinson's.
I would greatly appreciate any help, information, guidance, etc.

@whs2026
How long do these episodes last?
Jake

@jakedduck1 My episodes last 20 minutes to three-four hours; the spells are constant, happening all day & evening long and come out of nowhere...can be sitting, and I get a spell. Also, after taking a shower, drying dishes or taking clothes out of the dryer, I get a spell. Sometimes before I sit down for a meal, I get a spell.Also, I get a spell during the sleeping hours. Basically, the spells are non-stop with short breaks in between.

@whs2026 Meant to mention the symptoms of my "Spells":
1. Shortness-of-Breath, followed by
2. Total body weakness, followed by
3. Tightness in throat & face - difficult to speak, followed by
4. Chills
5. Pain in back between shoulder blades
6. Headaches

@jakedduck1 Additional information regarding my episodes/spells....
Meant to mention the symptoms of my "Spells":
1. Shortness-of-Breath, followed by
2. Total body weakness, followed by
3. Tightness in throat & face - difficult to speak, followed by
4. Chills
5. Pain in back between shoulder blades
6. Headaches

@hosey70 sounds like Cluster Seizures. My son has had them for years diagnosed at age 2 with epilepsy, Lennox-Gastaut Syndrome. Which has a distinct effect on EEG. Started with Multiple myoclonic jerks at an early age. He would have up to a hundred at a time, like rapid fire. Now that he is older, 37 he has similar episodes to what you described your husband having. Our son is mostly non-verbal so hard to know what he feels like. In the last 6 months he’s had 2 episodes of cluster seizures that have persisted for 6-8hrs. Both times related to UTI. The difference in our son’s case is each seizure usually lasts less than 60 seconds but repeats every 1-2 minutes. And again he has a distinct abnormal EEG with slow spike waves. A little over 2 years ago our youngest daughter was diagnosed with epilepsy after 3 episodes of “passing out” with short lose of consciousness, yet normal EEG. What prompted the diagnosis was when her husband FaceTimed me while she was seizing (generalized tonic type) that lasted at least 2-3 minutes followed by stupor/confusion. She slept on and off most of that day. She’s had one episode that I know of since diagnosis and being placed on anti seizure meds. Have you video taped any of these episodes? Might be helpful to show doctors.
Hoping you can get some answers soon.

Have they ruled out panic and anxiety attacks. I was diagnosed with epilepsy 60 years ago. Just recently, thru research, I'm positive that over the years that many seizures were actually panic and anxiety attacks. The symptoms look just like a seizure but start in a different part of the brain.