Do you still take calcium while on Tymlos?

Posted by Cynaburst, Alumna Mentor @cynaburst, May 20 5:42pm

I have been taking 1000 mg of calcium a day for the last couple of years. Before I took the calcium my parathyroid hormone levels were too high and when I started taking calcium they normalized.

For a time we thought I might have had a parathyroid adenoma but I had all the tests and then came back negative.

Anyway, I have read that Tymlos can increase calcium levels so some discontinue supplements. Just wondering what was your experience.

Thank you.

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Your doctor should order blood tests at three months to see how you are reacting to Tymlos. I get calcium from milk instead of pills, but I never changed anything while on Tymlos. My calcium went up over 10.0 for a while, but now it's back to normal. Doctor was not concerned at all.

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I've been on Tymlos for just over 2 months. From the beginning, my health provider instructed me to take in 1200 mg of calcium daily, weather from nutrition or supplements. I'll be sure to take in 800 mg from almond milk and then I take a 400 mg calcium citrate, along with 100 MCG of vitamin K2 and a total of 2500 IU of vitamin D3. My calcium levels and all of my other blood work have remained textbook perfect. My P1NP (128) to CTX (707) ratio was 181, after 3 wks @ full dose + 3 wks @ partial doses. (150 and higher ratio is believed to indicate a bone-building/anabolic response to the med. Good luck!!

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Profile picture for CathyF31 @cathyf31

I've been on Tymlos for just over 2 months. From the beginning, my health provider instructed me to take in 1200 mg of calcium daily, weather from nutrition or supplements. I'll be sure to take in 800 mg from almond milk and then I take a 400 mg calcium citrate, along with 100 MCG of vitamin K2 and a total of 2500 IU of vitamin D3. My calcium levels and all of my other blood work have remained textbook perfect. My P1NP (128) to CTX (707) ratio was 181, after 3 wks @ full dose + 3 wks @ partial doses. (150 and higher ratio is believed to indicate a bone-building/anabolic response to the med. Good luck!!

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@cathyf31 Thanks for posting your Tymlos status. I was concerned about continued use of Calcium supplement because of the risk of kidney stones. I also take K2 and MK7 for absorption of the calcium. HERE'S TO SISTERHOOD !!!!!!!!!!!!!!

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Profile picture for dunksmom1207 @dunksmom1207

@cathyf31 Thanks for posting your Tymlos status. I was concerned about continued use of Calcium supplement because of the risk of kidney stones. I also take K2 and MK7 for absorption of the calcium. HERE'S TO SISTERHOOD !!!!!!!!!!!!!!

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@dunksmom1207 no one should take calcium supplements unless they have taken a metabolic blood test (lab work) and their doctor advises it. I have been told to take calcium THREE times and they take the test then call me and say "oops, don't take the calcium supplement!." Calcium is over prescribed for women. Some of us -- especially if we have heart or artery disease can't take a calcium supplement. It deposits and hardens the arteries, stones as you mentioned, etc.

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Profile picture for dunksmom1207 @dunksmom1207

@cathyf31 Thanks for posting your Tymlos status. I was concerned about continued use of Calcium supplement because of the risk of kidney stones. I also take K2 and MK7 for absorption of the calcium. HERE'S TO SISTERHOOD !!!!!!!!!!!!!!

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@dunksmom1207 I also carry concern with the kidney stones, because I have had four in the last 5 years. All of those were before I was diagnosed with osteoporosis and took a calcium supplement. So far, so good!

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Profile picture for loriesco @loriesco

@dunksmom1207 no one should take calcium supplements unless they have taken a metabolic blood test (lab work) and their doctor advises it. I have been told to take calcium THREE times and they take the test then call me and say "oops, don't take the calcium supplement!." Calcium is over prescribed for women. Some of us -- especially if we have heart or artery disease can't take a calcium supplement. It deposits and hardens the arteries, stones as you mentioned, etc.

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@loriesco I think all my drs say take calcium without looking at my blood work. Which metabolic marker would tell me to not take calcium? Thanks:)

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Profile picture for summera1 @summera1

@loriesco I think all my drs say take calcium without looking at my blood work. Which metabolic marker would tell me to not take calcium? Thanks:)

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@summera1 a calcium test for calcium in your bloodstream. Maybe they’ve taken it and you just don’t know? But if not, absolutely take a calcium test! So many women are shocked when they get the results and they can’t take calcium supplements. I certainly was surprised. If your doctor isn’t cooperative, then just pay for it out of your own pocket so you can have the peace of mind.

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I was originally taking two 600 mg and told to go down to one 600 mg. My recent bloodwork showed a slight elevation in calcium, so my rheumatologist advised me to stop taking calcium altogether since Tymlos delivers calcium in the injections.

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Profile picture for pattycakes66 @pattycakes66

I was originally taking two 600 mg and told to go down to one 600 mg. My recent bloodwork showed a slight elevation in calcium, so my rheumatologist advised me to stop taking calcium altogether since Tymlos delivers calcium in the injections.

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@pattycakes66 I do not think that abaloparatide (brand Tymlos) delivers calcium according to how I interpret the FDA and The American College of Rheumatologists. It is a impossible to get a list of what something does not contain, but AI also supports the no-calcium interpretation.

Both of the references say that most people need to be sure that their calcium intake is adequate with special cautions for people with hypercalciuria.

FDA:
https://www.accessdata.fda.gov/drugsatfda_docs/label/2026/208743s017lbl.pdf
EXCERPT: "TYMLOS may cause hypercalciuria. If hypercalciuria is suspected, measurement of urinary calcium excretion should be considered"

From the The American College of Rheumatologists:
https://rheumatology.org/patients/abaloparatide-tymlos
EXCERPT: "To get the most benefit from use of abaloparatide, be sure to consume calcium-rich foods and/or take a calcium supplement. Total calcium intake from food and supplements should be at least 1200 mg per day."

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